{"title":"6-12岁吞咽困难儿童的食物相关道德经验：一项参与式解释学民族志研究方案","authors":"Giulia Ottonello, Franco Carnevale, Milko Zanini, Annamaria Bagnasco","doi":"10.1111/cch.70112","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Background</h3>\n \n <p>Food is a vital need for every individual, acting as sustenance and cultural expression. Adequate nutrition is a right for every child, influencing their self-perception and worldview. Children aged 6–12 with swallowing difficulties face unique food experiences influenced by relational and environmental factors. Understanding these experiences and factors that could shape these experiences is essential. Sameroff's transactional model highlights the dynamic interplay between children and their surroundings, especially families and caregivers, shaping children's food-related experiences. This study explores the food-related moral experiences of children with swallowing difficulties and how interactions with families/caregivers influence these experiences.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>This study employs participatory hermeneutic ethnography to explore the meaningful aspects of children's lives, including local norms and institutional practices. The research will focus on children aged 6 to 12 with swallowing difficulties, involving 10 to 15 participants from homes and schools. The participatory approach emphasizes children and families' active involvement, concentrating on food-related moral experiences. The analysis, guided by a Childhood Ethics framework, will consider family influences and healthcare contexts. Multiple methods, such as participant observation and interviews, will be used simultaneously in data collection, with ongoing involvement of children and families in the research process.</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>This study will enhance understanding of the food-related moral experiences of children with swallowing difficulties and inform targeted interventions to improve mealtime experiences.</p>\n </section>\n \n <section>\n \n <h3> Key Messages</h3>\n \n <div>\n \n <ul>\n \n \n <li>Food experiences in children with swallowing difficulties carry moral meaning (e.g., dignity, inclusion and autonomy).</li>\n \n \n <li>This study centres children's voices using participatory hermeneutic ethnography.</li>\n \n \n <li>Results will inform mealtime practices that support both nutrition and emotional well-being.</li>\n \n \n <li>Children and families should be active partners in care, research and policy.</li>\n \n \n <li>Findings can guide child-specific care strategies, training and policy changes.</li>\n </ul>\n </div>\n </section>\n </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 4","pages":""},"PeriodicalIF":1.8000,"publicationDate":"2025-06-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"The Food-Related Moral Experiences of Children (Aged 6–12) With Swallowing Difficulties: A Participatory Hermeneutic Ethnography Study Protocol\",\"authors\":\"Giulia Ottonello, Franco Carnevale, Milko Zanini, Annamaria Bagnasco\",\"doi\":\"10.1111/cch.70112\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n \\n <section>\\n \\n <h3> Background</h3>\\n \\n <p>Food is a vital need for every individual, acting as sustenance and cultural expression. Adequate nutrition is a right for every child, influencing their self-perception and worldview. Children aged 6–12 with swallowing difficulties face unique food experiences influenced by relational and environmental factors. Understanding these experiences and factors that could shape these experiences is essential. Sameroff's transactional model highlights the dynamic interplay between children and their surroundings, especially families and caregivers, shaping children's food-related experiences. This study explores the food-related moral experiences of children with swallowing difficulties and how interactions with families/caregivers influence these experiences.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Methods</h3>\\n \\n <p>This study employs participatory hermeneutic ethnography to explore the meaningful aspects of children's lives, including local norms and institutional practices. The research will focus on children aged 6 to 12 with swallowing difficulties, involving 10 to 15 participants from homes and schools. The participatory approach emphasizes children and families' active involvement, concentrating on food-related moral experiences. The analysis, guided by a Childhood Ethics framework, will consider family influences and healthcare contexts. Multiple methods, such as participant observation and interviews, will be used simultaneously in data collection, with ongoing involvement of children and families in the research process.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Conclusion</h3>\\n \\n <p>This study will enhance understanding of the food-related moral experiences of children with swallowing difficulties and inform targeted interventions to improve mealtime experiences.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Key Messages</h3>\\n \\n <div>\\n \\n <ul>\\n \\n \\n <li>Food experiences in children with swallowing difficulties carry moral meaning (e.g., dignity, inclusion and autonomy).</li>\\n \\n \\n <li>This study centres children's voices using participatory hermeneutic ethnography.</li>\\n \\n \\n <li>Results will inform mealtime practices that support both nutrition and emotional well-being.</li>\\n \\n \\n <li>Children and families should be active partners in care, research and policy.</li>\\n \\n \\n <li>Findings can guide child-specific care strategies, training and policy changes.</li>\\n </ul>\\n </div>\\n </section>\\n </div>\",\"PeriodicalId\":55262,\"journal\":{\"name\":\"Child Care Health and Development\",\"volume\":\"51 4\",\"pages\":\"\"},\"PeriodicalIF\":1.8000,\"publicationDate\":\"2025-06-08\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Child Care Health and Development\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/cch.70112\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"PEDIATRICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Child Care Health and Development","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/cch.70112","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PEDIATRICS","Score":null,"Total":0}
The Food-Related Moral Experiences of Children (Aged 6–12) With Swallowing Difficulties: A Participatory Hermeneutic Ethnography Study Protocol
Background
Food is a vital need for every individual, acting as sustenance and cultural expression. Adequate nutrition is a right for every child, influencing their self-perception and worldview. Children aged 6–12 with swallowing difficulties face unique food experiences influenced by relational and environmental factors. Understanding these experiences and factors that could shape these experiences is essential. Sameroff's transactional model highlights the dynamic interplay between children and their surroundings, especially families and caregivers, shaping children's food-related experiences. This study explores the food-related moral experiences of children with swallowing difficulties and how interactions with families/caregivers influence these experiences.
Methods
This study employs participatory hermeneutic ethnography to explore the meaningful aspects of children's lives, including local norms and institutional practices. The research will focus on children aged 6 to 12 with swallowing difficulties, involving 10 to 15 participants from homes and schools. The participatory approach emphasizes children and families' active involvement, concentrating on food-related moral experiences. The analysis, guided by a Childhood Ethics framework, will consider family influences and healthcare contexts. Multiple methods, such as participant observation and interviews, will be used simultaneously in data collection, with ongoing involvement of children and families in the research process.
Conclusion
This study will enhance understanding of the food-related moral experiences of children with swallowing difficulties and inform targeted interventions to improve mealtime experiences.
Key Messages
Food experiences in children with swallowing difficulties carry moral meaning (e.g., dignity, inclusion and autonomy).
This study centres children's voices using participatory hermeneutic ethnography.
Results will inform mealtime practices that support both nutrition and emotional well-being.
Children and families should be active partners in care, research and policy.
Findings can guide child-specific care strategies, training and policy changes.
期刊介绍：
Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.
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