Préoccupations et recommandations des parents et enseignants quant aux conditions de (re)scolarisation d’enfants et d’adolescents survivant d’une tumeur cérébrale : vers une synthèse

Introduction

The increasing survival rate of children with cancer raises questions about their future, particularly when it comes to returning to school. This is even more complex for children and teenagers with brain tumors, which generate more after-effects than other diseases, affecting schooling and the return to learning.

Aims of the paper

In this article, the authors present a summary of the literature on the period of return to school for children and adolescents with paediatric brain tumours. The aim of the review is to identify, through the experience of parents, teachers and the children/adolescents themselves, the conditions for schooling or returning to the classroom in different possible situations (after hospitalisation or treatment, with the child/adolescent in remission or relapse). The aim of this review is to highlight the concerns and recommendations of parents and teachers with a view to the introduction of specific school arrangements for young people with paediatric brain tumours, who are victims of an invisible disability.

Method

A systematic search of French and English-speaking papers was carried out using 8 different search engines. A total of 39 high-profile publications were selected, and 13 papers were finally included according to the PRISMA Method.

Results

Nine themes were highlighted, relating in particular to communication between the players involved in schooling, i.e. teachers, parents and care professionals, the coordination of actions and the emotional well-being of children and adolescents with brain tumors. Taken as a whole, the results point the way to improvements in the schooling of these young people with invisible disabilities and special educational needs.