Franziska Lumma, Johannes Knitza, Felix Mühlensiepen
{"title":"风湿病管理中数字化患者教育的潜力和障碍:一项探索性质的访谈研究。","authors":"Franziska Lumma, Johannes Knitza, Felix Mühlensiepen","doi":"10.1007/s00296-025-05893-5","DOIUrl":null,"url":null,"abstract":"<p><p>Patient education (PE) is essential, however hindered by the limited time of rheumatology healthcare professionals. Digital patient education (DPE) promises to bridge this care gap. This study explores the potential and challenges of DPE in rheumatology. Semi-structured expert interviews were conducted with 14 stakeholders across healthcare levels, including rheumatologists, specialized nurses, patient representatives, policymakers, and industry experts. Data were analyzed using qualitative content analysis following Kuckartz's methodology, with intracoder reliability assessed via the Brennan-Prediger Kappa coefficient. Three main themes emerged in the qualitative content analysis: (1) the status quo of PE in general, (2) the potentials and challenges of DPE and (3) DiRhIS as an emerging tool in the field of DPE in rheumatology. Participants highlighted significant gaps in traditional PE, including limited consultation time, inadequate access to information, and misinformation risks. While DPE was recognized as a promising tool to enhance patient knowledge, adherence, and shared decision-making, systemic barriers hinder adoption. Experts identified key obstacles such as resistance among healthcare providers, limited digital literacy among patients, and challenges in integrating DPE into clinical workflows. A hybrid model combining digital and in-person education was favored to address patient needs across different literacy levels. Successful implementation requires structured integration, stakeholder involvement, and strategies to address infrastructural and attitudinal barriers. Digital patient education (DPE) has the potential to enhance accessibility and the quality of patient education in rheumatology. Findings emphasize the need for personalized patient education, where the balance between face-to-face and digital learning is adapted to individual preferences, health literacy levels, and accessibility needs.</p>","PeriodicalId":21322,"journal":{"name":"Rheumatology International","volume":"45 6","pages":"148"},"PeriodicalIF":3.2000,"publicationDate":"2025-06-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12137533/pdf/","citationCount":"0","resultStr":"{\"title\":\"Potentials and barriers of digital patient education in rheumatic disease management: an exploratory qualitative interview study.\",\"authors\":\"Franziska Lumma, Johannes Knitza, Felix Mühlensiepen\",\"doi\":\"10.1007/s00296-025-05893-5\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Patient education (PE) is essential, however hindered by the limited time of rheumatology healthcare professionals. Digital patient education (DPE) promises to bridge this care gap. This study explores the potential and challenges of DPE in rheumatology. Semi-structured expert interviews were conducted with 14 stakeholders across healthcare levels, including rheumatologists, specialized nurses, patient representatives, policymakers, and industry experts. Data were analyzed using qualitative content analysis following Kuckartz's methodology, with intracoder reliability assessed via the Brennan-Prediger Kappa coefficient. Three main themes emerged in the qualitative content analysis: (1) the status quo of PE in general, (2) the potentials and challenges of DPE and (3) DiRhIS as an emerging tool in the field of DPE in rheumatology. Participants highlighted significant gaps in traditional PE, including limited consultation time, inadequate access to information, and misinformation risks. While DPE was recognized as a promising tool to enhance patient knowledge, adherence, and shared decision-making, systemic barriers hinder adoption. Experts identified key obstacles such as resistance among healthcare providers, limited digital literacy among patients, and challenges in integrating DPE into clinical workflows. A hybrid model combining digital and in-person education was favored to address patient needs across different literacy levels. Successful implementation requires structured integration, stakeholder involvement, and strategies to address infrastructural and attitudinal barriers. Digital patient education (DPE) has the potential to enhance accessibility and the quality of patient education in rheumatology. 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Potentials and barriers of digital patient education in rheumatic disease management: an exploratory qualitative interview study.
Patient education (PE) is essential, however hindered by the limited time of rheumatology healthcare professionals. Digital patient education (DPE) promises to bridge this care gap. This study explores the potential and challenges of DPE in rheumatology. Semi-structured expert interviews were conducted with 14 stakeholders across healthcare levels, including rheumatologists, specialized nurses, patient representatives, policymakers, and industry experts. Data were analyzed using qualitative content analysis following Kuckartz's methodology, with intracoder reliability assessed via the Brennan-Prediger Kappa coefficient. Three main themes emerged in the qualitative content analysis: (1) the status quo of PE in general, (2) the potentials and challenges of DPE and (3) DiRhIS as an emerging tool in the field of DPE in rheumatology. Participants highlighted significant gaps in traditional PE, including limited consultation time, inadequate access to information, and misinformation risks. While DPE was recognized as a promising tool to enhance patient knowledge, adherence, and shared decision-making, systemic barriers hinder adoption. Experts identified key obstacles such as resistance among healthcare providers, limited digital literacy among patients, and challenges in integrating DPE into clinical workflows. A hybrid model combining digital and in-person education was favored to address patient needs across different literacy levels. Successful implementation requires structured integration, stakeholder involvement, and strategies to address infrastructural and attitudinal barriers. Digital patient education (DPE) has the potential to enhance accessibility and the quality of patient education in rheumatology. Findings emphasize the need for personalized patient education, where the balance between face-to-face and digital learning is adapted to individual preferences, health literacy levels, and accessibility needs.
期刊介绍:
RHEUMATOLOGY INTERNATIONAL is an independent journal reflecting world-wide progress in the research, diagnosis and treatment of the various rheumatic diseases. It is designed to serve researchers and clinicians in the field of rheumatology.
RHEUMATOLOGY INTERNATIONAL will cover all modern trends in clinical research as well as in the management of rheumatic diseases. Special emphasis will be given to public health issues related to rheumatic diseases, applying rheumatology research to clinical practice, epidemiology of rheumatic diseases, diagnostic tests for rheumatic diseases, patient reported outcomes (PROs) in rheumatology and evidence on education of rheumatology. Contributions to these topics will appear in the form of original publications, short communications, editorials, and reviews. "Letters to the editor" will be welcome as an enhancement to discussion. Basic science research, including in vitro or animal studies, is discouraged to submit, as we will only review studies on humans with an epidemological or clinical perspective. Case reports without a proper review of the literatura (Case-based Reviews) will not be published. Every effort will be made to ensure speed of publication while maintaining a high standard of contents and production.
Manuscripts submitted for publication must contain a statement to the effect that all human studies have been reviewed by the appropriate ethics committee and have therefore been performed in accordance with the ethical standards laid down in an appropriate version of the 1964 Declaration of Helsinki. It should also be stated clearly in the text that all persons gave their informed consent prior to their inclusion in the study. Details that might disclose the identity of the subjects under study should be omitted.