试管婴儿中管理父母能力的问题:儿童福利委员会的角色——对单位主任的调查。

IF 2.7 3区 医学 Q2 GENETICS & HEREDITY
Avi Tsafrir, Tamar Artom, Raoul Orvieto, Jordana H Hyman, Zivit Worcman, Shlomit Tsafrir
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引用次数: 0

摘要

目的:检查儿童福利咨询委员会(CWCs)是否协助试管婴儿单位主任解决对未来父母能力(PC)的担忧。方法:于2023年11月对以色列26名IVF单位主任进行匿名在线调查,重点关注转介到CWC的情况、转介原因以及对CWC服务的满意度。结果:26名董事中,有23名回复(88%)。在3年的时间里,21例(91%)报告了推荐候选人到CWCs,推荐计数从1到“超过30”。最常提到的担忧是认知发育障碍(16名董事,72%),精神疾病(16名,72%)和严重的身体残疾(10名,43%)。13位董事(57%)认为化学武器的可用性和质量是合理的,而5位(21%)认为服务不足,3位(13%)表示根本无法获得。10名主任(43%)采用了替代策略,包括拒绝在没有CWC投入的情况下进行治疗,将患者转到其他地方,或延长评估以鼓励退出。四分之一的受访者表示,在进一步的评估请求或治疗被拒绝后,面临法律或行政方面的挑战。结论:对预期PC的担忧相对不常见,但在所有试管婴儿单位都存在。最常见的问题涉及认知发育障碍、精神疾病和严重的身体残疾。虽然大多数董事在这种情况下会咨询CWCs,但对其职能的满意度参差不齐。这些发现突出表明,需要制定更清晰的指南和更容易获得、一致的咨询结构,以支持临床医生管理复杂病例。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Managing parental capacity concerns in IVF: the role of child welfare committees-a survey of unit directors.

Purpose: To examine whether Child Welfare Advisory Committees (CWCs) assist IVF unit directors in addressing concerns about prospective parental capacity (PC).

Methods: An anonymous online survey of 26 IVF unit directors in Israel was conducted in November 2023, focusing on referrals to CWCs, reasons for referral, and satisfaction with CWC services.

Results: Of the 26 directors, 23 responded (88%). Over a 3-year period, 21 (91%) reported referring candidates to CWCs, with referral counts ranging from 1 to "over 30." The most frequently cited concerns were cognitive developmental disability (16 directors, 72%), mental illness (also 16, 72%), and severe physical disability (10, 43%). Thirteen directors (57%) rated CWC availability and quality as reasonable, while five (21%) found services insufficient, and three (13%) reported no access at all. Ten directors (43%) used alternative strategies, including denying treatment without CWC input, referring patients elsewhere, or prolonging the assessment to encourage withdrawal. One in four respondents reported facing legal or administrative challenges following further evaluation requests or treatment refusals.

Conclusions: Concerns about prospective PC are relatively uncommon but present in all IVF units. The most frequent concerns relate to cognitive developmental disability, mental illness, and severe physical disabilities. While most directors consult CWCs in such cases, satisfaction with their function is mixed. These findings highlight the need for clearer guidelines and more accessible, consistent consultation structures to support clinicians in managing complex cases.

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来源期刊
CiteScore
5.70
自引率
9.70%
发文量
286
审稿时长
1 months
期刊介绍: The Journal of Assisted Reproduction and Genetics publishes cellular, molecular, genetic, and epigenetic discoveries advancing our understanding of the biology and underlying mechanisms from gametogenesis to offspring health. Special emphasis is placed on the practice and evolution of assisted reproduction technologies (ARTs) with reference to the diagnosis and management of diseases affecting fertility. Our goal is to educate our readership in the translation of basic and clinical discoveries made from human or relevant animal models to the safe and efficacious practice of human ARTs. The scientific rigor and ethical standards embraced by the JARG editorial team ensures a broad international base of expertise guiding the marriage of contemporary clinical research paradigms with basic science discovery. JARG publishes original papers, minireviews, case reports, and opinion pieces often combined into special topic issues that will educate clinicians and scientists with interests in the mechanisms of human development that bear on the treatment of infertility and emerging innovations in human ARTs. The guiding principles of male and female reproductive health impacting pre- and post-conceptional viability and developmental potential are emphasized within the purview of human reproductive health in current and future generations of our species. The journal is published in cooperation with the American Society for Reproductive Medicine, an organization of more than 8,000 physicians, researchers, nurses, technicians and other professionals dedicated to advancing knowledge and expertise in reproductive biology.
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