Connor Watkins, Kim Gordon, Gemma Mercer, Alistair Teager
{"title":"“一段不稳定时期”：作为长期意识障碍患者的男性家庭成员的经历；解释性现象学分析。","authors":"Connor Watkins, Kim Gordon, Gemma Mercer, Alistair Teager","doi":"10.1080/09602011.2025.2510296","DOIUrl":null,"url":null,"abstract":"<p><p>Prolonged Disorders of Consciousness (PDoC) are complex conditions characterised by sustained consciousness impairment lasting over four weeks following sudden-onset severe brain injuries. These conditions pose emotional and social challenges for family members. This study aims to enhance understanding of the lived experiences of male family members dealing with PDoC in the UK. Semi-structured interviews were conducted with six adult male family members, and Interpretative Phenomenological Analysis (IPA) revealed three Group Experiential Themes: (1) \"Facing the Unknown: The Emotional Journey\"; (2) \"Finding Meaning and Navigating Forward\"; and (3) \"The Landscape of Care\". The findings highlight the emotional challenges faced by male family members and their efforts to find meaning, resilience and navigate the care pathway. Insights for professionals include the need for a family-orientated approach that offers understanding, compassion, holistic support and collaboration in care.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-24"},"PeriodicalIF":1.9000,"publicationDate":"2025-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"\\\"A period of limbo\\\": The experience of being a male family member of a person in a prolonged disorder of consciousness (PDoC); an Interpretative Phenomenological Analysis.\",\"authors\":\"Connor Watkins, Kim Gordon, Gemma Mercer, Alistair Teager\",\"doi\":\"10.1080/09602011.2025.2510296\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Prolonged Disorders of Consciousness (PDoC) are complex conditions characterised by sustained consciousness impairment lasting over four weeks following sudden-onset severe brain injuries. These conditions pose emotional and social challenges for family members. This study aims to enhance understanding of the lived experiences of male family members dealing with PDoC in the UK. Semi-structured interviews were conducted with six adult male family members, and Interpretative Phenomenological Analysis (IPA) revealed three Group Experiential Themes: (1) \\\"Facing the Unknown: The Emotional Journey\\\"; (2) \\\"Finding Meaning and Navigating Forward\\\"; and (3) \\\"The Landscape of Care\\\". The findings highlight the emotional challenges faced by male family members and their efforts to find meaning, resilience and navigate the care pathway. Insights for professionals include the need for a family-orientated approach that offers understanding, compassion, holistic support and collaboration in care.</p>\",\"PeriodicalId\":54729,\"journal\":{\"name\":\"Neuropsychological Rehabilitation\",\"volume\":\" \",\"pages\":\"1-24\"},\"PeriodicalIF\":1.9000,\"publicationDate\":\"2025-06-02\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Neuropsychological Rehabilitation\",\"FirstCategoryId\":\"102\",\"ListUrlMain\":\"https://doi.org/10.1080/09602011.2025.2510296\",\"RegionNum\":3,\"RegionCategory\":\"心理学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"NEUROSCIENCES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Neuropsychological Rehabilitation","FirstCategoryId":"102","ListUrlMain":"https://doi.org/10.1080/09602011.2025.2510296","RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"NEUROSCIENCES","Score":null,"Total":0}
"A period of limbo": The experience of being a male family member of a person in a prolonged disorder of consciousness (PDoC); an Interpretative Phenomenological Analysis.
Prolonged Disorders of Consciousness (PDoC) are complex conditions characterised by sustained consciousness impairment lasting over four weeks following sudden-onset severe brain injuries. These conditions pose emotional and social challenges for family members. This study aims to enhance understanding of the lived experiences of male family members dealing with PDoC in the UK. Semi-structured interviews were conducted with six adult male family members, and Interpretative Phenomenological Analysis (IPA) revealed three Group Experiential Themes: (1) "Facing the Unknown: The Emotional Journey"; (2) "Finding Meaning and Navigating Forward"; and (3) "The Landscape of Care". The findings highlight the emotional challenges faced by male family members and their efforts to find meaning, resilience and navigate the care pathway. Insights for professionals include the need for a family-orientated approach that offers understanding, compassion, holistic support and collaboration in care.
期刊介绍：
Neuropsychological Rehabilitation publishes human experimental and clinical research related to rehabilitation, recovery of function, and brain plasticity. The journal is aimed at clinicians who wish to inform their practice in the light of the latest scientific research; at researchers in neurorehabilitation; and finally at researchers in cognitive neuroscience and related fields interested in the mechanisms of recovery and rehabilitation. Papers on neuropsychological assessment will be considered, and special topic reviews (2500-5000 words) addressing specific key questions in rehabilitation, recovery and brain plasticity will also be welcomed. The latter will enter a fast-track refereeing process.
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