Anita Nath, Prashant Mathur, Kondalli Lakshminarayana Sudarshan, Ramandeep Arora, Rachna Seth, Sanjiv Kumar, Girish Chinnaswamy, Atul Budukh, Varinder Singh, T Priya Kumari, Raja Paramjeet Singh Banipal, Vijay Kumar Bodal, A R Arun Kumar, C R Vijay, T Avinash, C Ramesh, Sadashivudu Gundeti, Shikha Malik, Narendra Kumar Chaudhary, Gautam Majumdar, Deepshikha Das, Nita Radhakrishnan, V Surya Rao, Manoj Rawal, Jeremy L Pautu, Deepak Sundriyal, Munlima Hazarika, Caleb Harris, Sunil Natha Jondhale, Vinotsole Khamo, Arshad Manzoor Najmi, Puneet Pareek, Ratan Konjengbam, Saroj Kumar Das Majumdar, Shashank Pandya, Anand Shah, S B Singh, Venkatraman Radhakrishnan, R Swaminathan, Chandra Mohan Kumar, Pritanjali Singh, Lokesh Tiwari, Syamsundar Mandal, Sopai Tawsik, Awadhesh Kumar Pandey, K Gunaseelan, Tseten W Bhutia
{"title":"利益相关者对印度儿童癌症护理障碍和促进因素的看法。","authors":"Anita Nath, Prashant Mathur, Kondalli Lakshminarayana Sudarshan, Ramandeep Arora, Rachna Seth, Sanjiv Kumar, Girish Chinnaswamy, Atul Budukh, Varinder Singh, T Priya Kumari, Raja Paramjeet Singh Banipal, Vijay Kumar Bodal, A R Arun Kumar, C R Vijay, T Avinash, C Ramesh, Sadashivudu Gundeti, Shikha Malik, Narendra Kumar Chaudhary, Gautam Majumdar, Deepshikha Das, Nita Radhakrishnan, V Surya Rao, Manoj Rawal, Jeremy L Pautu, Deepak Sundriyal, Munlima Hazarika, Caleb Harris, Sunil Natha Jondhale, Vinotsole Khamo, Arshad Manzoor Najmi, Puneet Pareek, Ratan Konjengbam, Saroj Kumar Das Majumdar, Shashank Pandya, Anand Shah, S B Singh, Venkatraman Radhakrishnan, R Swaminathan, Chandra Mohan Kumar, Pritanjali Singh, Lokesh Tiwari, Syamsundar Mandal, Sopai Tawsik, Awadhesh Kumar Pandey, K Gunaseelan, Tseten W Bhutia","doi":"10.1007/s13312-025-00098-2","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>To explore the stakeholders' perspectives on barriers and facilitators influencing childhood cancer care delivery in India.</p><p><strong>Methods: </strong>A nationwide survey was conducted across 26 states and 4 Union Territories, involving childhood cancer physicians from tertiary and secondary hospitals, state nodal officers (SNOs) for the National Programme for Control of Non-Communicable Diseases (NP-NCD), and representatives from Civil Society Organizations (CSOs) and Non-Governmental Organizations (NGOs). A hub-and-spoke sampling model was employed, with designated tertiary hospitals coordinating data collection from secondary hospitals. An online survey tool assessed perceived challenges and facilitators in childhood cancer care. Data collection occurred from July to September 2021, and descriptive statistics were used for analysis.</p><p><strong>Results: </strong>Responses were received from 137 tertiary hospitals (100%), 92 secondary hospitals (91%), 16 SNOs (53.3%), and 9 CSO/NGO representatives (23.1%). Key barriers to diagnosis and treatment included shortage of human resources, beds, and equipment, along with advanced-stage presentation and inadequate back-referrals from tertiary to secondary hospitals. Treatment abandonment and denial were highlighted as major concerns. SNOs and CSOs identified financial constraints, limited insurance coverage, and reliance on traditional healers as additional challenges. Facilitators included strengthening referral networks, expanding diagnostic capabilities, ensuring free treatment and medications, and improving infrastructure and workforce capacity.</p><p><strong>Conclusion: </strong>Resource constraints, late-stage presentation, treatment abandonment, and financial challenges are the significant barriers to childhood cancer care in India. Addressing these through improved referral systems, expanded diagnostic services, financial support mechanisms, and policy-level interventions are needed to enhance childhood cancer care outcomes and quality of life.</p>","PeriodicalId":13291,"journal":{"name":"Indian pediatrics","volume":" ","pages":""},"PeriodicalIF":1.7000,"publicationDate":"2025-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Stakeholder's Perspectives on the Barriers and Facilitators of Childhood Cancer Care in India.\",\"authors\":\"Anita Nath, Prashant Mathur, Kondalli Lakshminarayana Sudarshan, Ramandeep Arora, Rachna Seth, Sanjiv Kumar, Girish Chinnaswamy, Atul Budukh, Varinder Singh, T Priya Kumari, Raja Paramjeet Singh Banipal, Vijay Kumar Bodal, A R Arun Kumar, C R Vijay, T Avinash, C Ramesh, Sadashivudu Gundeti, Shikha Malik, Narendra Kumar Chaudhary, Gautam Majumdar, Deepshikha Das, Nita Radhakrishnan, V Surya Rao, Manoj Rawal, Jeremy L Pautu, Deepak Sundriyal, Munlima Hazarika, Caleb Harris, Sunil Natha Jondhale, Vinotsole Khamo, Arshad Manzoor Najmi, Puneet Pareek, Ratan Konjengbam, Saroj Kumar Das Majumdar, Shashank Pandya, Anand Shah, S B Singh, Venkatraman Radhakrishnan, R Swaminathan, Chandra Mohan Kumar, Pritanjali Singh, Lokesh Tiwari, Syamsundar Mandal, Sopai Tawsik, Awadhesh Kumar Pandey, K Gunaseelan, Tseten W Bhutia\",\"doi\":\"10.1007/s13312-025-00098-2\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>To explore the stakeholders' perspectives on barriers and facilitators influencing childhood cancer care delivery in India.</p><p><strong>Methods: </strong>A nationwide survey was conducted across 26 states and 4 Union Territories, involving childhood cancer physicians from tertiary and secondary hospitals, state nodal officers (SNOs) for the National Programme for Control of Non-Communicable Diseases (NP-NCD), and representatives from Civil Society Organizations (CSOs) and Non-Governmental Organizations (NGOs). A hub-and-spoke sampling model was employed, with designated tertiary hospitals coordinating data collection from secondary hospitals. An online survey tool assessed perceived challenges and facilitators in childhood cancer care. Data collection occurred from July to September 2021, and descriptive statistics were used for analysis.</p><p><strong>Results: </strong>Responses were received from 137 tertiary hospitals (100%), 92 secondary hospitals (91%), 16 SNOs (53.3%), and 9 CSO/NGO representatives (23.1%). Key barriers to diagnosis and treatment included shortage of human resources, beds, and equipment, along with advanced-stage presentation and inadequate back-referrals from tertiary to secondary hospitals. Treatment abandonment and denial were highlighted as major concerns. SNOs and CSOs identified financial constraints, limited insurance coverage, and reliance on traditional healers as additional challenges. Facilitators included strengthening referral networks, expanding diagnostic capabilities, ensuring free treatment and medications, and improving infrastructure and workforce capacity.</p><p><strong>Conclusion: </strong>Resource constraints, late-stage presentation, treatment abandonment, and financial challenges are the significant barriers to childhood cancer care in India. Addressing these through improved referral systems, expanded diagnostic services, financial support mechanisms, and policy-level interventions are needed to enhance childhood cancer care outcomes and quality of life.</p>\",\"PeriodicalId\":13291,\"journal\":{\"name\":\"Indian pediatrics\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":1.7000,\"publicationDate\":\"2025-06-02\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Indian pediatrics\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1007/s13312-025-00098-2\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"PEDIATRICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Indian pediatrics","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1007/s13312-025-00098-2","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PEDIATRICS","Score":null,"Total":0}
Stakeholder's Perspectives on the Barriers and Facilitators of Childhood Cancer Care in India.
Objective: To explore the stakeholders' perspectives on barriers and facilitators influencing childhood cancer care delivery in India.
Methods: A nationwide survey was conducted across 26 states and 4 Union Territories, involving childhood cancer physicians from tertiary and secondary hospitals, state nodal officers (SNOs) for the National Programme for Control of Non-Communicable Diseases (NP-NCD), and representatives from Civil Society Organizations (CSOs) and Non-Governmental Organizations (NGOs). A hub-and-spoke sampling model was employed, with designated tertiary hospitals coordinating data collection from secondary hospitals. An online survey tool assessed perceived challenges and facilitators in childhood cancer care. Data collection occurred from July to September 2021, and descriptive statistics were used for analysis.
Results: Responses were received from 137 tertiary hospitals (100%), 92 secondary hospitals (91%), 16 SNOs (53.3%), and 9 CSO/NGO representatives (23.1%). Key barriers to diagnosis and treatment included shortage of human resources, beds, and equipment, along with advanced-stage presentation and inadequate back-referrals from tertiary to secondary hospitals. Treatment abandonment and denial were highlighted as major concerns. SNOs and CSOs identified financial constraints, limited insurance coverage, and reliance on traditional healers as additional challenges. Facilitators included strengthening referral networks, expanding diagnostic capabilities, ensuring free treatment and medications, and improving infrastructure and workforce capacity.
Conclusion: Resource constraints, late-stage presentation, treatment abandonment, and financial challenges are the significant barriers to childhood cancer care in India. Addressing these through improved referral systems, expanded diagnostic services, financial support mechanisms, and policy-level interventions are needed to enhance childhood cancer care outcomes and quality of life.
期刊介绍：
The general objective of Indian Pediatrics is "To promote the science and practice of Pediatrics." An important guiding principle has been the simultaneous need to inform, educate and entertain the target audience. The specific key objectives are:
-To publish original, relevant, well researched peer reviewed articles on issues related to child health.
-To provide continuing education to support informed clinical decisions and research.
-To foster responsible and balanced debate on controversial issues that affect child health, including non-clinical areas such as medical education, ethics, law, environment and economics.
-To achieve the highest level of ethical medical journalism and to produce a publication that is timely, credible and enjoyable to read.
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