“因为每个人都是不同的”:共同设计遗体捐赠计划的同意程序。

IF 4.7 2区 教育学 Q1 EDUCATION, SCIENTIFIC DISCIPLINES
Georgina C Stephens
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引用次数: 0

摘要

虽然人们普遍认为,用于解剖学教育的遗体捐赠应该依赖于知情同意,但同意程序存在很大差异。遗体捐赠的最佳实践指南通常由解剖学学会发布,可能无法反映潜在捐赠者或利用捐赠遗体进行教学和学习的教育者和学生所重视的细节。作为为澳大利亚莫纳什大学拟议的遗体捐赠项目设计同意程序的第一步,这项研究将潜在的遗体捐赠者、学生和教育工作者聚集在一起,探讨他们对遗体捐赠同意的看法。本研究采用了共同设计方法,这是一种参与行动研究的形式,重视并包括不同的利益相关者来理解现象并为变革提供信息。22名研究参与者包括7名对莫纳什大学未来的遗体捐赠计划感兴趣的潜在捐赠者,9名学生,3名教育工作者,以及3名确定为教育工作者和潜在遗体捐赠者的参与者。通过4个混合利益相关者焦点小组收集数据,并使用专题分析进行分析。研究开发了四个主题:(1)伦理和法律同意基础;(2)知情同意;(3)个性化同意;(4)面向未来的同意。虽然一些调查结果支持现有的同意准则(例如,知情同意要求信息充足),但其他调查结果强调了如何扩大同意过程以纳入社区价值观。例如,同意过程可以包括学生和潜在捐赠者之间的讨论,并确保与潜在捐赠者的沟通随着时间的推移而持续。至关重要的是,同意过程应该认识到“每个人都是不同的”,并致力于包容不同的捐赠者偏好。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"Because everybody's different": Co-designing body donor program consent processes.

While it is broadly accepted that body donation for anatomical education should rely on informed consent, consent processes vary substantially. Best practice guidelines for body donation are typically published by anatomical societies and may not reflect details valued by prospective donors or the educators and students who utilize donor bodies for teaching and learning. As an initial step to designing a consent process for a proposed body donor program at Monash University in Australia, this study brought together prospective body donors, students, and educators to explore their perspectives on donor consent. This study utilized co-design methodology, a form of participatory action research that values and includes diverse stakeholders to understand phenomena and inform change. The 22 study participants comprised 7 prospective donors who expressed interest in a future body donor program at Monash University, 9 students, 3 educators, and 3 participants who identified as educators and prospective body donors. Data were collected through 4 mixed stakeholder focus groups and were analyzed using thematic analysis. Four themes were developed: (1) Ethical and legal consent foundations, (2) Informed consent, (3) Individualized consent, and (4) Future-focused consent. While some findings support existing consent guidelines (e.g. informed consent requiring information adequacy), other findings highlight how consent processes could be expanded to incorporate community values. For instance, consent processes could include discussions between students and prospective donors and ensure that communication with prospective donors continues over time. Critically, consent processes should recognize that "everybody's different" and aim for inclusivity of diverse donor preferences.

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来源期刊
Anatomical Sciences Education
Anatomical Sciences Education Anatomy/education-
CiteScore
10.30
自引率
39.70%
发文量
91
期刊介绍: Anatomical Sciences Education, affiliated with the American Association for Anatomy, serves as an international platform for sharing ideas, innovations, and research related to education in anatomical sciences. Covering gross anatomy, embryology, histology, and neurosciences, the journal addresses education at various levels, including undergraduate, graduate, post-graduate, allied health, medical (both allopathic and osteopathic), and dental. It fosters collaboration and discussion in the field of anatomical sciences education.
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