An Explorative Study of the Unspoken Grieving Experiences of Bereaved Family Members-An Indian Perspective.

Background: A vast majority of advanced cancer care, including palliative and end-of-life care, is provided by the family members. Loss of loved ones leads to practical, emotional and psychological distress and thereby poor quality of life.

Aim: The present study aims to explore the psycho social experiences of bereaved family members in the Indian context.

Methods: In this prospective observational qualitative study, bereaved family members were (N = 42) interviewed using a semi-structured in-depth interview schedule, after obtaining consent. Interviews were digitally recorded, transcribed and translated by the researcher. Manual thematic analysis was used for analysing the data collected.

Results: The thematic analysis of the transcripts revealed six key themes: Heightened distress, family expectations, emotional conflicts versus collusion, challenges during COVID pandemic, coping with self and others, and gratification from caregiving. Many family members maintained a positive outlook on the care they provided and shared effective coping strategies. However, most reported heightened distress due to the loss of their loved one and struggled with emotional expectations during the grieving process. Negative experiences with collusion and its consequences were also noted. The COVID-19 pandemic's impact, particularly in limiting access to support, was another significant challenge for many family members.

Conclusion: caregiving during illness or loss presents significant challenges, including emotional strain, family issues, and external stressors like the COVID-19 pandemic. However, caregivers often find fulfilment and develop effective coping strategies to manage these difficulties. It is essential to address both the emotional and practical aspects of caregiving, particularly during crises, to support family members throughout their journey.