肯尼亚的数字行动主义:从数字中心到数字边缘的长期经验。

IF 5.9 2区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Emily Mendenhall, Lucy W Kamau, Nora Kenworthy, Edna N Bosire
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引用次数: 0

摘要

随着患者、研究人员和临床医生共同努力了解这种慢性疾病,围绕Long Covid的数字活动在全球范围内引起了反响。然而,与其他社交网络一样,长冠网络也存在层级和障碍,可能会阻碍公平访问。在本文中,我们将研究全球数字中心和外围如何影响长冠肺炎患者如何连接到网络,以了解他们的疾病症状、诊断、治疗和经历。我们介绍了两个肯尼亚妇女的案例叙述——一个是连接到数字中心的内罗毕精英,另一个是通过外围数字社区与她联系的中产阶级妇女——来描述精英患者是如何参与到数字中心的,而非精英患者是如何通过数字和非数字连接参与到外围的,通过这些连接,他们建立了其他的社会网络来交流、分享和体验他们的疾病经历。肯尼亚的案例研究介绍了一个背景,那里的人们拥有复杂的数字生活,并参与全球信息网络。然而,我们认为,一些长冠患者的经历与数字行动主义是不可能分离的,数字行动主义将一个非凡的全球患者社区聚集在一起,对世界各地人们如何定义和体验自我和疾病产生了连锁反应。我们的结论是,许多肯尼亚人可能以不同的方式参与数字网络,来自不同的地理、文化、语言和技术力量,可能培养出不同的成语、解释和后病毒状态的经验。这不仅展示了社交网络在数字边缘的运作方式,也展示了边缘本身的复杂性,它位于与数字中心相连的重要社交节点上。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Digital activism in Kenya: moving from the digital center to the digital periphery of Long Covid experience.

Digital activism around Long Covid has reverberated around the globe, as patients, researchers, and clinicians worked together to understand the chronic condition. However, Long Covid networks, much like other social networks, have hierarchies and barriers that can impede equitable access. In this article, we examine how the global digital center and periphery shape how people with Long Covid connect to networks to learn about their illness symptoms, diagnoses, treatments, and experiences. We introduce case narratives of two Kenyan women-one elite Nairobian who was connected to the digital center and another middle class woman who connected with her through a peripheral digital community-to describe how elite patients were engaged at the digital center, and non-elite patients were engaged in the periphery with digital and non-digital connections through which they cultivated other social networks to communicate, share, and experience their illness experiences. The Kenyan case study introduces a context where people have sophisticated digital lives and are engaged in global information networks. Yet, we argue that some Long Covid patients' experiences are impossible to divorce from the digital activism that has drawn together a remarkable global patient community, causing a ripple effect on how people define and experience the self and illness throughout the world. We conclude that many Kenyans may be engaging with digital networks differently and from different places of geographic, cultural, linguistic, and technological power, possibly cultivating divergent idioms, interpretations, and experiences of the post-viral condition. This demonstrates not only how social networks function at the digital periphery but also the complexities situated within the periphery itself, which is at important social nodes, connected to the digital center.

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来源期刊
Globalization and Health
Globalization and Health PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
18.40
自引率
1.90%
发文量
93
期刊介绍: "Globalization and Health" is a pioneering transdisciplinary journal dedicated to situating public health and well-being within the dynamic forces of global development. The journal is committed to publishing high-quality, original research that explores the impact of globalization processes on global public health. This includes examining how globalization influences health systems and the social, economic, commercial, and political determinants of health. The journal welcomes contributions from various disciplines, including policy, health systems, political economy, international relations, and community perspectives. While single-country studies are accepted, they must emphasize global/globalization mechanisms and their relevance to global-level policy discourse and decision-making.
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