Evaluating the Quality and Readability of Online Information on Hidradenitis Suppurativa: A Systematic Review.

Hidradenitis suppurativa (HS) is a chronic inflammatory skin disorder associated with significant physical, psychological, and social burdens. Despite increasing recognition, diagnostic delays remain common, often prompting patients to seek information online. This systematic review evaluated the quality and readability of HS-related information across AI-generated content, search engine derived resources, and social media platforms. A comprehensive search of PubMed, Embase, Cochrane Library, and Google Scholar identified 17 studies published between 2017 and 2024 that assessed HS-related online content using validated scoring tools and/or physician evaluation. More than 50% of studies rated online HS materials as variable in quality, with 36.4% rating them as moderate. Readability assessments revealed that most resources exceeded the recommended 6th to 8th grade reading level, limiting accessibility for patients. Social media platforms, particularly TikTok and YouTube, featured highly engaging but frequently inaccurate or anecdotal content, with physician-generated materials receiving lower engagement than non-medical sources. These findings highlight the critical need for simplified, evidence-based online resources to improve health literacy and support informed decision-making in HS. The prevalence of misinformation, particularly regarding alternative treatments and pharmaceutical scepticism, underscores the urgency of enhanced patient education strategies. Future efforts should focus on AI-driven readability improvements, clinician engagement in digital education, and collaboration with social media platforms to ensure the availability of accessible, high-quality HS information.