Diana Fonseca Rodrigues, António Luís Rodrigues Faria de Carvalho, Cristina Maria Correia Barroso Pinto
{"title":"下肢截肢患者家庭照护者的经验与挑战:一项质性研究。","authors":"Diana Fonseca Rodrigues, António Luís Rodrigues Faria de Carvalho, Cristina Maria Correia Barroso Pinto","doi":"10.1590/1980-220X-REEUSP-2024-0264en","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>To explore the experiences of family caregivers transitioning to their roles of caregivers for people with dysvascular major lower limb amputation, identify the challenges they face, understand their specific needs during this transition, examine their experiences during the hospital-to-home transition, and gather insights into strategies that promote empowerment in caregiving.</p><p><strong>Method: </strong>This exploratory, cross-sectional descriptive study employed a qualitative approach, conducting semi-structured interviews with 40 family caregivers of individuals with dysvascular major lower limb amputation. Data were analyzed using ATLAS.ti software and Bardin's content analysis method.</p><p><strong>Results: </strong>Content analysis identified five categories: 1) family caregiver role, 2) amputee needs/difficulties, 3) family caregiver needs/difficulties, 4) home transition, and 5) strategies to promote family caregiver empowerment, highlighting critical aspects of the caregiving experience and identifying areas for intervention.</p><p><strong>Conclusion: </strong>The findings emphasize the need for family-centered empowerment programs combining hospital-based training with community support. Future research should evaluate their impact on reducing caregiver burden and improving outcomes for both caregivers and amputees.</p>","PeriodicalId":94195,"journal":{"name":"Revista da Escola de Enfermagem da U S P","volume":"59 ","pages":"e20240264"},"PeriodicalIF":0.0000,"publicationDate":"2025-05-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12118359/pdf/","citationCount":"0","resultStr":"{\"title\":\"Experiences and challenges of family caregivers of people with lower limb amputation: a qualitative study.\",\"authors\":\"Diana Fonseca Rodrigues, António Luís Rodrigues Faria de Carvalho, Cristina Maria Correia Barroso Pinto\",\"doi\":\"10.1590/1980-220X-REEUSP-2024-0264en\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>To explore the experiences of family caregivers transitioning to their roles of caregivers for people with dysvascular major lower limb amputation, identify the challenges they face, understand their specific needs during this transition, examine their experiences during the hospital-to-home transition, and gather insights into strategies that promote empowerment in caregiving.</p><p><strong>Method: </strong>This exploratory, cross-sectional descriptive study employed a qualitative approach, conducting semi-structured interviews with 40 family caregivers of individuals with dysvascular major lower limb amputation. Data were analyzed using ATLAS.ti software and Bardin's content analysis method.</p><p><strong>Results: </strong>Content analysis identified five categories: 1) family caregiver role, 2) amputee needs/difficulties, 3) family caregiver needs/difficulties, 4) home transition, and 5) strategies to promote family caregiver empowerment, highlighting critical aspects of the caregiving experience and identifying areas for intervention.</p><p><strong>Conclusion: </strong>The findings emphasize the need for family-centered empowerment programs combining hospital-based training with community support. Future research should evaluate their impact on reducing caregiver burden and improving outcomes for both caregivers and amputees.</p>\",\"PeriodicalId\":94195,\"journal\":{\"name\":\"Revista da Escola de Enfermagem da U S P\",\"volume\":\"59 \",\"pages\":\"e20240264\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2025-05-26\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12118359/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Revista da Escola de Enfermagem da U S P\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1590/1980-220X-REEUSP-2024-0264en\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/1/1 0:00:00\",\"PubModel\":\"eCollection\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Revista da Escola de Enfermagem da U S P","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1590/1980-220X-REEUSP-2024-0264en","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/1/1 0:00:00","PubModel":"eCollection","JCR":"","JCRName":"","Score":null,"Total":0}
Experiences and challenges of family caregivers of people with lower limb amputation: a qualitative study.
Objective: To explore the experiences of family caregivers transitioning to their roles of caregivers for people with dysvascular major lower limb amputation, identify the challenges they face, understand their specific needs during this transition, examine their experiences during the hospital-to-home transition, and gather insights into strategies that promote empowerment in caregiving.
Method: This exploratory, cross-sectional descriptive study employed a qualitative approach, conducting semi-structured interviews with 40 family caregivers of individuals with dysvascular major lower limb amputation. Data were analyzed using ATLAS.ti software and Bardin's content analysis method.
Results: Content analysis identified five categories: 1) family caregiver role, 2) amputee needs/difficulties, 3) family caregiver needs/difficulties, 4) home transition, and 5) strategies to promote family caregiver empowerment, highlighting critical aspects of the caregiving experience and identifying areas for intervention.
Conclusion: The findings emphasize the need for family-centered empowerment programs combining hospital-based training with community support. Future research should evaluate their impact on reducing caregiver burden and improving outcomes for both caregivers and amputees.