{"title":"声称正常:安曼的残疾、耻辱和关系。","authors":"Christine Sargent","doi":"10.1111/maq.70003","DOIUrl":null,"url":null,"abstract":"<p><p>Drawing on the experiences of mothers raising children with Down syndrome in Amman, Jordan, this article approaches disability stigma as a phenomenon that attached to meaningful relations of kinship and community. These same relations, however, enabled mothers, children, spouses, relatives, and other disability advocates to (re)claim Down syndrome as normal. In doing so, they challenged extant narratives that treated embodied difference as a relational risk in need of containment. \"Normal\" possesses disciplinary and oppressive capacities, but it can also become an effective tool. Claiming \"normal\" helped some families situate Down syndrome as an unexceptional way of being in the world and a valuable mode of being in relations with others.</p>","PeriodicalId":47649,"journal":{"name":"Medical Anthropology Quarterly","volume":" ","pages":"e70003"},"PeriodicalIF":2.0000,"publicationDate":"2025-05-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Claiming normal: Disability, stigma, and relationality in Amman.\",\"authors\":\"Christine Sargent\",\"doi\":\"10.1111/maq.70003\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Drawing on the experiences of mothers raising children with Down syndrome in Amman, Jordan, this article approaches disability stigma as a phenomenon that attached to meaningful relations of kinship and community. These same relations, however, enabled mothers, children, spouses, relatives, and other disability advocates to (re)claim Down syndrome as normal. In doing so, they challenged extant narratives that treated embodied difference as a relational risk in need of containment. \\\"Normal\\\" possesses disciplinary and oppressive capacities, but it can also become an effective tool. Claiming \\\"normal\\\" helped some families situate Down syndrome as an unexceptional way of being in the world and a valuable mode of being in relations with others.</p>\",\"PeriodicalId\":47649,\"journal\":{\"name\":\"Medical Anthropology Quarterly\",\"volume\":\" \",\"pages\":\"e70003\"},\"PeriodicalIF\":2.0000,\"publicationDate\":\"2025-05-26\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Medical Anthropology Quarterly\",\"FirstCategoryId\":\"90\",\"ListUrlMain\":\"https://doi.org/10.1111/maq.70003\",\"RegionNum\":2,\"RegionCategory\":\"社会学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"ANTHROPOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Medical Anthropology Quarterly","FirstCategoryId":"90","ListUrlMain":"https://doi.org/10.1111/maq.70003","RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"ANTHROPOLOGY","Score":null,"Total":0}
Claiming normal: Disability, stigma, and relationality in Amman.
Drawing on the experiences of mothers raising children with Down syndrome in Amman, Jordan, this article approaches disability stigma as a phenomenon that attached to meaningful relations of kinship and community. These same relations, however, enabled mothers, children, spouses, relatives, and other disability advocates to (re)claim Down syndrome as normal. In doing so, they challenged extant narratives that treated embodied difference as a relational risk in need of containment. "Normal" possesses disciplinary and oppressive capacities, but it can also become an effective tool. Claiming "normal" helped some families situate Down syndrome as an unexceptional way of being in the world and a valuable mode of being in relations with others.
期刊介绍:
Medical Anthropology Quarterly: International Journal for the Analysis of Health publishes research and theory in the field of medical anthropology. This broad field views all inquiries into health and disease in human individuals and populations from the holistic and cross-cultural perspective distinctive of anthropology as a discipline -- that is, with an awareness of species" biological, cultural, linguistic, and historical uniformity and variation. It encompasses studies of ethnomedicine, epidemiology, maternal and child health, population, nutrition, human development in relation to health and disease, health-care providers and services, public health, health policy, and the language and speech of health and health care.