了解持久左心室辅助装置植入后第一个月护理伙伴的经验。

IF 0.6 4区 医学 Q4 SURGERY
Bernice Coleman, Bibiana Martinez, Lianna Z Ansryan, Ariz Amoroso Guzman, Harriet Aronow, Linda Olanisa, Michelle Williams-Rivers, David Chang, Carmelita Runyan, Newman Huie, Jennifer Pamu, Kristin E Sandau
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引用次数: 0

摘要

导言:耐用的左心室辅助装置是晚期心力衰竭患者进行心脏移植的关键桥梁。然而,对护理伙伴(CPs)的要求往往被低估,他们在支持移植后康复方面的福祉往往被忽视。方法/途径:这个定性的单点研究探讨了13名CPs的挣扎和支持需求,他们在设备放置后参加了录音采访。结果:数据分析采用归纳内容分析法,揭示了6个主要主题:感觉没有准备、高度警惕、感觉不知所措、CP消失、缺乏自我照顾和需要与其他CP联系。调查结果显示,CPs经常感到被医疗团队忽视,导致情绪困扰和孤立,而对围手术期并发症的教育不足和同伴支持的缺失加强了他们的准备感。结论:这些结果强调了CP健康在维持成功的设备管理和确保患者仍然符合心脏移植条件方面所起的不可或缺的作用。心理社会服务、同伴支持和有组织的教育项目可能有助于减轻cp所经历的压力,改善移植结果。从植入开始,将CP需求嵌入到移植途径中,对于防止衰竭、维持候选性和提高移植后整体成功率至关重要。以cp为中心的干预措施的改进可能有助于减少医院再入院,提高设备的依从性,并支持情绪恢复能力。通过在晚期心力衰竭管理中优先考虑CP支持,移植项目可以优化患者和CP的健康,并促进积极的结果。这样的重点确保了移植的衔接和家庭的希望。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Understanding Care Partner Experiences in the First Month After Durable Left Ventricular Assist Device Implantation.

Introduction: Durable left ventricular assist devices serve as a critical bridge to heart transplantation for patients with advanced heart failure. Yet the demands placed on care partners (CPs) are often underestimated, and their well-being in supporting postimplant recovery is frequently overlooked.

Methods/approach: This qualitative single-site study explored the struggles and support needs of 13 CPs who participated in audio-recorded interviews following device placement.

Findings: Data analysis, using inductive content analysis, revealed 6 major themes: feeling unprepared, being hypervigilant, feeling overwhelmed, the vanishing CP, lacking self-care, and needing connection with other CPs. Findings revealed that CPs often felt overlooked by healthcare teams, contributing to emotional distress and isolation, while inadequate education on perioperative complications and minimal peer support reinforced their sense of being unprepared.

Conclusion: These results underscored the integral role that CP well-being played in sustaining successful device management and ensuring patients remained eligible for heart transplantation. Psychosocial services, peer support, and structured educational programs may help mitigate the strain experienced by CPs and improve transplantation outcomes. Embedding CP needs into the transplant pathway, beginning at implantation, was essential to preventing burnout, maintaining candidacy, and improving overall posttransplant success. Refinements in CP-centered interventions may help reduce hospital readmissions, enhance device adherence, and support emotional resilience. By prioritizing CP support within advanced heart failure management, transplant programs can optimize both patient and CP well-being and foster positive outcomes. Such focus ensures bridging to transplantation and hope for families.

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来源期刊
Progress in Transplantation
Progress in Transplantation SURGERY-TRANSPLANTATION
CiteScore
1.50
自引率
12.50%
发文量
44
审稿时长
6-12 weeks
期刊介绍: Progress in Transplantation (PIT) is the official journal of NATCO, The Organization for Transplant Professionals. Journal Partners include: Australasian Transplant Coordinators Association and Society for Transplant Social Workers. PIT reflects the multi-disciplinary team approach to procurement and clinical aspects of organ and tissue transplantation by providing a professional forum for exchange of the continually changing body of knowledge in transplantation.
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