儿童人群化脓性汗腺炎的健康相关生活质量和临床特征

IF 1.3 Q2 DERMATOLOGY
Dermatology Reports Pub Date : 2025-05-23 Epub Date: 2024-10-16 DOI:10.4081/dr.2024.10086
Anna Dattolo, Francesca Sampogna, Simona Mastroeni, Luca Fania, Davide Ciccone, Damiano Abeni
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引用次数: 0

摘要

化脓性汗腺炎(HS)是一种慢性皮肤免疫介导的炎症性疾病(sIMID),对生活质量(QoL)有很高的影响。关于儿童HS患者的临床管理、合并症、社会心理负担和精神障碍的数据很少。本研究的目的是比较成人和儿童HS患者与健康相关的生活质量(HRQoL)的临床特征和患者报告的结果测量(PROMs)。收集了601例HS患者的数据,其中60例(10.0%)为儿科。心理和HRQoL的影响在成人中普遍高于儿童,但在儿科患者中也值得注意。基于对患者及其家属的教育和心理支持的早期诊断和干预是最佳疾病管理和依从性的关键。我们的研究强调了筛查hs相关精神疾病和使用年龄特异性工具评估HRQoL的必要性。需要多学科方法,包括几位专家,以及与初级保健专家联络,以改善HS患者合并症和心理问题的护理和管理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Health-related quality of life and clinical characteristics of hidradenitis suppurativa in a pediatric population.

Health-related quality of life and clinical characteristics of hidradenitis suppurativa in a pediatric population.

Hidradenitis suppurativa (HS) is a chronic, skin-immunemediated inflammatory disease (sIMID), with a high impact on quality of life (QoL). Data on clinical management, comorbidities, psychosocial burden, and psychiatric disorders in pediatric patients with HS are scarce. The aim of our study was to compare clinical characteristics and patient-reported outcome measures (PROMs) for health-related quality of life (HRQoL) in adult and pediatric patients with HS. Data were collected on 601 patients with HS, 60 of whom (10.0%) were pediatric. The psychological and HRQoL impact was generally higher in adults than children, but it was also noteworthy in pediatric patients. Early diagnosis and interventions based on education for the patients and their families and psychological support are the key to optimal disease management and adherence. Our study underlines the need for screening for HS-associated psychiatric disorders and for using age-specific tools to evaluate HRQoL. A multidisciplinary approach involving several specialists is needed, as well as liaison with primary care specialists to improve care and management of comorbidities and psychological issues in patients with HS.

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来源期刊
Dermatology Reports
Dermatology Reports DERMATOLOGY-
CiteScore
1.40
自引率
0.00%
发文量
74
审稿时长
10 weeks
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