为脑瘫儿童制定包容性舞蹈指南:共同设计过程和初步可行性研究

IF 3 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Eduardo Duarte Machado, Laura Miller, Joanna Nicholas, Joanne Cross, Rhyannon Orr, Michael H. Cole
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引用次数: 0

摘要

参与社区活动对所有儿童都显示出积极的结果,但脑瘫(CP)儿童的参与程度仍各不相同。本研究旨在通过共同设计一个实用指南来支持CP儿童参与社区舞蹈课程,以解决CP儿童家庭在参加社区舞蹈课程时面临的挑战。该指南是通过学术研究人员、舞蹈专业人员、治疗师和CP儿童家庭的合作过程制定的。共同设计阶段由国际公众参与协会(IAP2)指导,与11个研究伙伴进行了研讨会,其中包括两位CP儿童的父母、两位社区舞蹈教师、两位具有舞蹈干预经验的治疗师和五位学术研究人员。未参与共同设计的“舞蹈教师评审”的反馈也被纳入,以支持指南的初步可行性。结果通过共同努力,形成了以生活经验为基础的循证指南。它提供了可行的策略,以有效地实施包容性舞蹈方法,支持将CP儿童纳入社区舞蹈环境。共同设计的指南是促进CP儿童包容性舞蹈课程的重要一步。未来的研究应探索指南在各种社区环境中实施的有效性和可行性,以确保其更广泛的适用性和影响。CP患儿的家长、舞蹈教师和治疗师积极参与了本研究的各个阶段,从公众咨询到协作共同设计研讨会、决策、审查和改进指南。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Developing an Inclusive Dance Guide for Children With Cerebral Palsy: A Co-Design Process and Initial Feasibility Study

Background

Participation in community activities has shown positive outcomes for all children, yet those with cerebral palsy (CP) still experience varying levels of inclusion. This study aimed to address the challenges faced by families of children with CP in accessing community-based dance classes by co-designing a practical guide to support their inclusion.

Design

The guide was developed through a collaborative process involving academic researchers, dance professionals, therapists and families of children with CP. The co-design phase was guided by the International Association for Public Participation (IAP2), workshops were conducted with 11 research partners, including two parents of children with CP, two community dance teachers, two therapists with experience in dance interventions and five academic researchers. Feedback from ‘Dance Teacher Reviewers’ who were not involved in the co-design was also incorporated to support the guide's initial feasibility.

Results

The collaborative efforts resulted in an evidence-based guide shaped by lived experiences. It provides actionable strategies to implement inclusive dance approaches effectively, supporting the inclusion of children with CP in community dance settings.

Conclusion

The co-designed guide represents a significant step toward facilitating inclusive dance classes for children with CP. Future research should explore the guide's effectiveness and feasibility of implementation across various community settings to ensure its broader applicability and impact.

Patient or Public Contribution

Parents of children with CP, dance teachers and therapists actively contributed to all stages of this study, from public consultation to collaborative co-design workshops, decision-making, review and refinement of the guide.

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来源期刊
Health Expectations
Health Expectations 医学-公共卫生、环境卫生与职业卫生
CiteScore
5.20
自引率
9.40%
发文量
251
审稿时长
>12 weeks
期刊介绍: Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.
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