高收入国家华人社区的痴呆症护理:通过定性综合探讨未满足的需求和经验。

IF 2.2
Kristina M Kokorelias, Wai Lun Alan Fung, Erica Nekolaichuk, Miranda Wu, Hardeep Singh
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引用次数: 0

摘要

痴呆症是一项重大的全球挑战,护理伙伴(家庭照顾者)——通常是家庭成员——在提供护理和支持方面发挥着核心作用,特别是在高收入国家。然而,护理经验受到种族、民族、文化价值观和资源获取等因素的影响,因此需要进行包容性研究,以更好地了解和解决护理伙伴的不同需求,特别是在中国侨民社区等少数民族群体中。我们采用了包含几个关键步骤的元综合方法,包括定义研究问题、评估初步研究、进行元方法和元理论分析以及综合研究结果。本研究是在Arksey和O'Malley的范围审查框架内进行的,并遵循PRISMA-ScR指南。共纳入10篇文章。中国社区对痴呆症的文化认知通常将其视为衰老的自然组成部分,导致诊断和治疗延迟,而护理决定则受到孝道、经济约束和文化规范的影响。护理合作伙伴面临着诸如耻辱、缺乏意识以及获得文化敏感支持的机会有限等障碍,导致情绪和身体紧张,往往因孤立和在卫生保健系统中导航的挑战而恶化。解决文化耻辱感,提高意识,并增加获得文化上适当支持的机会,对于改善中国社区的痴呆症护理至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Dementia caregiving in Chinese communities in high-income countries: Exploring unmet needs and experiences through a qualitative meta-synthesis.

Dementia presents significant global challenges, with care partners (family caregivers)-often family members-playing a central role in providing care and support, particularly in high-income countries. However, caregiving experiences are shaped by factors such as race, ethnicity, cultural values, and access to resources, necessitating inclusive research to better understand and address the diverse needs of care partners, particularly within ethnic minority groups like Chinese diaspora communities. We employed a meta-synthesis approach with several key steps, including defining the research question, evaluating primary studies, conducting meta-method and meta-theory analyses, and synthesizing findings. This study was framed within Arksey and O'Malley's scoping review framework and adhered to PRISMA-ScR guidelines. Ten articles were included. Cultural perceptions of dementia in Chinese communities often view it as a natural part of aging, leading to delays in diagnosis and treatment, while caregiving decisions are influenced by filial piety, financial constraints, and cultural norms. Care partners face barriers such as stigma, lack of awareness, and limited access to culturally sensitive support, leading to emotional and physical strain, often worsened by isolation and the challenges of navigating healthcare systems. Addressing cultural stigma, improving awareness, and enhancing access to culturally appropriate support are crucial for improving dementia care for Chinese communities.

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