唐氏综合症患者的父母:产前检查的意见和经验。

IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL
Charlotte Bryony Bell, Nick Hutchinson
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引用次数: 0

摘要

社会对残疾的接受程度越来越高。然而,临床和医疗程序的进步使检测遗传标记和允许孕妇选择终止妊娠变得更加容易。其中一项筛查是针对唐氏综合症。这种筛查的可用性经常引起社会的讨论。这种筛选测试的方式和随后的结果可能会引起父母的不安情绪。这篇叙述性综述的目的是汇集论文,探讨唐氏综合症患者父母对产前检测的看法。使用主题综合分析了12项研究。确定了五个上级主题:决策和不测试的原因,专业人员,测试后情绪,社会意见,对测试后勤的意见。结果表明,产前检测仍然有不同的意见和经验,往往依赖于与社会和专业人士的互动。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Parents of individuals with Down's syndrome: Opinions and experience of prenatal testing.

The acceptance of disability within society is increasing. However advances in clinical and medical procedures make it easier to test for genetic markers and to allow pregnant women to choose to terminate a pregnancy. One of the screenings offered is for Down syndrome. The availability of this screening is often cause for discussion within society. The way in which this screening test and subsequent results are delivered can prompt difficult emotions in parents. This narrative review aims to draw together papers exploring the opinions on prenatal testing from parents of individuals with Down syndrome. Twelve studies were analysed using Thematic Synthesis. Five superordinate themes were identified: decision making and reason for not testing, professionals, post-test emotions, societal opinions, opinions on the logistics of testing. The results suggest that there are still varied opinions and experiences of prenatal testing, often dependant on interactions with society and professionals.

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来源期刊
CiteScore
3.40
自引率
13.30%
发文量
82
期刊介绍: The principal aim of the journal is to provide a medium for the exchange of best practice, knowledge and research between academic and professional disciplines from education, social and health settings to bring about advancement of services for people with intellectual disabilities. The idea of a practice-led journal is both exciting and timely. This journal serves as a medium for all those involved with people with intellectual disabilities to submit and publish papers on issues relevant to promoting services for people with intellectual disabilities.
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