澳大利亚成年脊髓损伤患者的性康复支持经验。

IF 1.5 4区 医学 Q3 CLINICAL NEUROLOGY
Andrew Allen, Marita Heck, Connor Doig, Timothy Cudmore, Katrina Lawrence, Jonathan Mason
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引用次数: 0

摘要

目的:性行为是幸福的基本组成部分,而脊髓损伤会严重损害幸福感。然而,与康复相关的性生活质量仍然没有得到充分解决。设计:采用理论驱动的定性方法,运用材料、话语、内在心理理论(包括性的多个维度),本研究探讨了9名澳大利亚脊髓损伤(SCI)成人生命支持经历的性质量;不同SCI水平的男性(n=8)和女性(n=1)。结果:参与者的回答反映了先前关于SCI中性行为的研究,注意到强调身体方面(例如勃起和射精能力)而忽视心理和人际关系。材料理论、话语理论、内在心理理论的三个核心组成部分被映射到数据的主题上,表明除了脊髓损伤的身体影响外,一个人的身份和与他人的关系,以及与残疾耻辱相关的社会文化话语,共同影响着性健康。结论:实际的性康复支持提供个性化的帮助,以建立情感联系,发展技能,并提供个性化的设备建议,是改善脊髓损伤后性健康的基础。摘要:本研究收集了脊髓损伤患者的信息,以便在理论框架的指导下更好地了解他们对性生活质量的看法。在对收集到的信息进行分析后,突出的主题包括性功能、丧失自主性、残疾的耻辱和羞耻,以及伴侣的开放性和能力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Sexual rehabilitation support experiences of Australian adults living with a spinal cord injury.

Objective: Sexuality constitutes a fundamental component of wellbeing, which can be profoundly compromised by spinal cord injury. Yet, sexual quality of life associated with rehabilitation remains inadequately addressed.

Design: Using a theory-driven, qualitative methodology and applying Material, Discursive, Intrapsychic Theory (encompassing multiple dimensions of sexuality), this study explored the sexual quality of life support experiences of nine Australian adults with spinal cord injury (SCI); male (n=8) and female (n=1) with varying levels of SCI using online interviews.

Results: Participants' responses reflected previous research on sexuality in SCI, noting an emphasis on physical aspects (e.g. erection and ejaculation ability) to the neglect of the psychological and interpersonal. The three core components of Material, Discursive, Intrapsychic Theory were mapped onto themes from the data, demonstrating that aside from the physical impact of SCI, one's identity and relational connection to others, in addition to sociocultural discourse related to disability stigma, collectively impacted sexual wellbeing.

Conclusions: Practical sexual rehabilitation support that provides individualized assistance to build emotional connection, develop skills and offer personalized recommendations for equipment is fundamental to improving sexual wellbeing after a SCI.

Lay summary: : This study collected information from people with a spinal cord injury to better understand their perceptions of sexual quality of life guided by a theoretical framework. Following analysis of collected information, prominent themes encompassed sexual functioning, loss of autonomy, disability stigma and shame, and partner openness and ability.

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来源期刊
Journal of Spinal Cord Medicine
Journal of Spinal Cord Medicine 医学-临床神经学
CiteScore
4.20
自引率
5.90%
发文量
101
审稿时长
6-12 weeks
期刊介绍: For more than three decades, The Journal of Spinal Cord Medicine has reflected the evolution of the field of spinal cord medicine. From its inception as a newsletter for physicians striving to provide the best of care, JSCM has matured into an international journal that serves professionals from all disciplines—medicine, nursing, therapy, engineering, psychology and social work.
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