Emily A Barr, Jake Brasch, Carrie Glenny, Jacqueline Jones, Kathleen Oman, Sean M Reed
{"title":"信任在病人-提供者关系:一个艺术为基础的研究电影探索信任在青少年和年轻的成年人与艾滋病毒。","authors":"Emily A Barr, Jake Brasch, Carrie Glenny, Jacqueline Jones, Kathleen Oman, Sean M Reed","doi":"10.1080/17533015.2025.2493148","DOIUrl":null,"url":null,"abstract":"<p><p>Arts-based research offers an innovative method for exploring complex emotions such as trust by capturing subjective experiences that traditional methods may overlook. Adolescents and young adults with HIV (AYA-WH) are less likely than older adults to achieve viral suppression and remain engaged in care, with only 40-60% retained one year post-transition to adult services. Patient-provider trust plays a critical role in care engagement and adherence, yet little is known about how AYA-WH experience and interpret trust. Using a cross-sectional mixed-methods approach guided by Caring Science, Carper's Ways of Knowing, and Robinson's trust-building model, researchers analyzed free-text survey responses from 108 participants (60% male, 61% non-white, and 39% perinatally acquired HIV). Iterative coding revealed key themes, culminating in Trust: An Exploration in Three Parts, a six-minute film co-created with an award-winning playwright. The film presents themes of trust, patient-provider relationships, and silver linings, offering providers an accessible tool to foster trust and improve care engagement.</p>","PeriodicalId":45944,"journal":{"name":"Arts & Health","volume":" ","pages":"1-18"},"PeriodicalIF":1.5000,"publicationDate":"2025-05-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Trust in the patient-provider relationship: an arts-based research film exploring trust in adolescents and young adults with HIV.\",\"authors\":\"Emily A Barr, Jake Brasch, Carrie Glenny, Jacqueline Jones, Kathleen Oman, Sean M Reed\",\"doi\":\"10.1080/17533015.2025.2493148\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Arts-based research offers an innovative method for exploring complex emotions such as trust by capturing subjective experiences that traditional methods may overlook. Adolescents and young adults with HIV (AYA-WH) are less likely than older adults to achieve viral suppression and remain engaged in care, with only 40-60% retained one year post-transition to adult services. Patient-provider trust plays a critical role in care engagement and adherence, yet little is known about how AYA-WH experience and interpret trust. Using a cross-sectional mixed-methods approach guided by Caring Science, Carper's Ways of Knowing, and Robinson's trust-building model, researchers analyzed free-text survey responses from 108 participants (60% male, 61% non-white, and 39% perinatally acquired HIV). Iterative coding revealed key themes, culminating in Trust: An Exploration in Three Parts, a six-minute film co-created with an award-winning playwright. The film presents themes of trust, patient-provider relationships, and silver linings, offering providers an accessible tool to foster trust and improve care engagement.</p>\",\"PeriodicalId\":45944,\"journal\":{\"name\":\"Arts & Health\",\"volume\":\" \",\"pages\":\"1-18\"},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2025-05-13\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Arts & Health\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/17533015.2025.2493148\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Arts & Health","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/17533015.2025.2493148","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH","Score":null,"Total":0}
Trust in the patient-provider relationship: an arts-based research film exploring trust in adolescents and young adults with HIV.
Arts-based research offers an innovative method for exploring complex emotions such as trust by capturing subjective experiences that traditional methods may overlook. Adolescents and young adults with HIV (AYA-WH) are less likely than older adults to achieve viral suppression and remain engaged in care, with only 40-60% retained one year post-transition to adult services. Patient-provider trust plays a critical role in care engagement and adherence, yet little is known about how AYA-WH experience and interpret trust. Using a cross-sectional mixed-methods approach guided by Caring Science, Carper's Ways of Knowing, and Robinson's trust-building model, researchers analyzed free-text survey responses from 108 participants (60% male, 61% non-white, and 39% perinatally acquired HIV). Iterative coding revealed key themes, culminating in Trust: An Exploration in Three Parts, a six-minute film co-created with an award-winning playwright. The film presents themes of trust, patient-provider relationships, and silver linings, offering providers an accessible tool to foster trust and improve care engagement.