从自我倡导自闭症到倡导神经多样性社区的转变。

IF 1.5 Q4 HEALTH CARE SCIENCES & SERVICES
African Journal of Disability Pub Date : 2025-04-14 eCollection Date: 2025-01-01 DOI:10.4102/ajod.v14i0.1560
Emile Gouws
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引用次数: 0

摘要

背景:在这篇文章中,我回顾了我成为自闭症自我倡导者的持续旅程,以及这是如何扩展到更广泛的神经多样性社区的。目的:我的目的是对自闭症自我倡导的价值进行学术分析,特别是在建立应对歧视的韧性和倡导平等机会、支持和包容方面。方法:我的自我民族志反思与我的共同建设者的反思相融合,以呈现定义我成为国际公认的自闭症倡导者的旅程的关键事件。结果:教育是改变我生活的变革性力量,让我有机会在各种本地和国际平台上倡导更广泛的神经多样性社区,并指导我创建一个由家庭和专业人士组成的生态系统,他们不断支持我和其他神经多样性人士。我的倡导旨在提高对自闭症的认识,这在很大程度上改变了实践社区以及其他对支持和包容自闭症患者感兴趣的人的看法。结论:需要一个关怀和支持网络来维持自闭症自我宣传,并以此为基础来倡导更广泛的神经多样性社区。贡献:这表明需要教育利益相关者提高他们对自闭症儿童和成人的期望,也需要教师和心理学家继续支持自闭症谱系障碍(ASD)家庭和儿童,以充分发挥其人类潜力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Transitioning from autism self-advocacy to advocating for the neurodiverse community.

Background: In this article, I reflect on my continuing journey of becoming an autism self-advocate and how this has extended to advocate for the broader neurodiverse community.

Objectives: I aimed to provide an academic analysis of the value of autism self-advocacy with special reference to building resilience to confront discrimination and advocating for equal opportunities, support and inclusion.

Method: My autoethnographic reflections are fused with those of my co-constructors to present critical incidents that defined my journey of becoming an internationally recognised advocate for autism.

Results: Education has been the transformative force that has changed my life, granting me opportunities to advocate for my broader neurodiverse community on various local and international platforms and guiding me to create an ecosystem of family and professionals who continuously support me and others who are neurodiverse. My advocacy, which aims at raising autism awareness, has changed the perceptions of the community of practice as well as others with an interest in supporting and including individuals living with autism in a significant way.

Conclusion: A network of care and support is required to sustain autism self-advocacy and to build on it to advocate for the broader neurodiverse community.

Contribution: This demonstrates the need for educating stakeholders to raise their expectations for autistic children and adults and for teachers and psychologists to continue supporting families and children with Autism Spectrum Disorder (ASD) to realise their full human potential.

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来源期刊
African Journal of Disability
African Journal of Disability HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.10
自引率
5.90%
发文量
50
审稿时长
20 weeks
期刊介绍: The African Journal of Disability, the official journal of CRS, AfriNEAD and CEDRES, introduce and discuss issues and experiences relating to and supporting the act of better understanding the interfaces between disability, poverty and practices of exclusion and marginalisation. Its articles yield new insight into established human development practices, evaluate new educational techniques and disability research, examine current cultural and social discrimination, and bring serious critical analysis to bear on problems shared across the African continent. Emphasis is on all aspects of disability particularity in the developing African context. This includes, amongst others: -disability studies as an emerging field of public health enquiry -rehabilitation, including vocational and community-based rehabilitation -community development and medical issues related to disability and poverty -disability-related stigma and discrimination -inclusive education -legal, policy, human rights and advocacy issues related to disability -the role of arts and media in relation to disability -disability as part of global Sustainable Development Goals transformation agendas -disability and postcolonial issues -globalisation and cultural change in relation to disability -environmental and climate-related issues linked to disability -disability, diversity and intersections of identity -disability and the promotion of human development.
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