Emika S Miller, Celia E Wills, Kimberly S Wilson-Lawson, Mary Beth Happ, Alai Tan, Todd B Monroe, Karen O Moss
{"title":"黑人老年痴呆症患者的前照顾者对提前护理计划的看法。","authors":"Emika S Miller, Celia E Wills, Kimberly S Wilson-Lawson, Mary Beth Happ, Alai Tan, Todd B Monroe, Karen O Moss","doi":"10.3928/00989134-20250417-01","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>To describe the perspectives of lower socioeconomic status (SES) former family caregivers of Black persons living with dementia (PLWD) on advance care planning needs and preferences for their care recipients.</p><p><strong>Method: </strong>Semi-structured interviews were completed with 17 lower SES former family caregivers of Black PLWD. Basic qualitative description was used for these analyses.</p><p><strong>Results: </strong>Four major themes were identified: (1) <i>Improvements Needed for Caregiver Education</i>, (2) <i>Caregiver Support Needs During and After Caregiving</i>, (3) <i>Obstacles Faced During Caregiving</i>, and (4) <i>Need for Restored Identity Following Care Recipient Death</i>. Former family caregivers also expressed a desire to support current caregivers.</p><p><strong>Conclusion: </strong>Findings fill a critical gap in the literature by highlighting challenges faced during and after caregiving. Future research should leverage perspectives of former caregivers to assist with improving outcomes for Black caregivers, thereby promoting health equity. [<i>Journal of Gerontological Nursing, 51</i>(6), 30-37.].</p>","PeriodicalId":15848,"journal":{"name":"Journal of gerontological nursing","volume":" ","pages":"30-37"},"PeriodicalIF":1.1000,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12122212/pdf/","citationCount":"0","resultStr":"{\"title\":\"Perspectives of Former Caregivers of Black Older Adults Living With Dementia on Advance Care Planning.\",\"authors\":\"Emika S Miller, Celia E Wills, Kimberly S Wilson-Lawson, Mary Beth Happ, Alai Tan, Todd B Monroe, Karen O Moss\",\"doi\":\"10.3928/00989134-20250417-01\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Purpose: </strong>To describe the perspectives of lower socioeconomic status (SES) former family caregivers of Black persons living with dementia (PLWD) on advance care planning needs and preferences for their care recipients.</p><p><strong>Method: </strong>Semi-structured interviews were completed with 17 lower SES former family caregivers of Black PLWD. Basic qualitative description was used for these analyses.</p><p><strong>Results: </strong>Four major themes were identified: (1) <i>Improvements Needed for Caregiver Education</i>, (2) <i>Caregiver Support Needs During and After Caregiving</i>, (3) <i>Obstacles Faced During Caregiving</i>, and (4) <i>Need for Restored Identity Following Care Recipient Death</i>. Former family caregivers also expressed a desire to support current caregivers.</p><p><strong>Conclusion: </strong>Findings fill a critical gap in the literature by highlighting challenges faced during and after caregiving. Future research should leverage perspectives of former caregivers to assist with improving outcomes for Black caregivers, thereby promoting health equity. [<i>Journal of Gerontological Nursing, 51</i>(6), 30-37.].</p>\",\"PeriodicalId\":15848,\"journal\":{\"name\":\"Journal of gerontological nursing\",\"volume\":\" \",\"pages\":\"30-37\"},\"PeriodicalIF\":1.1000,\"publicationDate\":\"2025-06-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12122212/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of gerontological nursing\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.3928/00989134-20250417-01\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/4/24 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q4\",\"JCRName\":\"GERIATRICS & GERONTOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of gerontological nursing","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.3928/00989134-20250417-01","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/4/24 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"GERIATRICS & GERONTOLOGY","Score":null,"Total":0}
Perspectives of Former Caregivers of Black Older Adults Living With Dementia on Advance Care Planning.
Purpose: To describe the perspectives of lower socioeconomic status (SES) former family caregivers of Black persons living with dementia (PLWD) on advance care planning needs and preferences for their care recipients.
Method: Semi-structured interviews were completed with 17 lower SES former family caregivers of Black PLWD. Basic qualitative description was used for these analyses.
Results: Four major themes were identified: (1) Improvements Needed for Caregiver Education, (2) Caregiver Support Needs During and After Caregiving, (3) Obstacles Faced During Caregiving, and (4) Need for Restored Identity Following Care Recipient Death. Former family caregivers also expressed a desire to support current caregivers.
Conclusion: Findings fill a critical gap in the literature by highlighting challenges faced during and after caregiving. Future research should leverage perspectives of former caregivers to assist with improving outcomes for Black caregivers, thereby promoting health equity. [Journal of Gerontological Nursing, 51(6), 30-37.].
期刊介绍：
The Journal of Gerontological Nursing is a monthly, peer-reviewed journal publishing clinically relevant original articles on the practice of gerontological nursing across the continuum of care in a variety of health care settings, for more than 40 years.
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