探索埃塞俄比亚东部乳腺癌支持团体对生存和治疗决策的影响:一项定性研究。

IF 2.8 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Nahom G Belete, Meera Bhakta, Tara Wilfong, Mahlet Shewangizaw, Edilawit Abebaw Abera, Yehenaw Tenaw, Michael Shawel, Habtamu Seife, Biruk Habtamu, Nahom Wondwossen, Elizabeth A Wood
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引用次数: 0

摘要

目的:本研究探讨乳腺癌(BC)支持团体对埃塞俄比亚哈拉尔妇女生存和治疗决策的心理社会影响。它考察了文化、社会和经济因素对治疗决策的影响,并评估了支持团体在应对这些挑战方面的有效性。方法:采用半结构化、深度访谈和焦点小组讨论的社区案例研究。参与者包括参加BC支持小组的妇女和主要信息提供者,包括医疗保健提供者,护理人员和精神领袖。数据在Hiwot Fana癌症治疗中心收集,并使用归纳方法对主题进行分析,以确定关键主题。结果:该研究强调了及时治疗BC的重大障碍,包括文化耻辱感、财政限制、对替代医学的依赖和有限的医疗基础设施。支持团体在改善情绪和心理健康、培养社区意识和影响治疗决策方面发挥了关键作用。参与者报告提高了认识,减少了耻辱,加强了社区宣传。结论:Harar的BC支持小组通过提供心理社会支持和减轻治疗障碍来解决癌症治疗方面的关键差距。这些团体还作为社区教育和宣传的平台,促进早期发现和现代治疗做法。对癌症幸存者的启示:支持团体通过改善情绪恢复能力,促进知情的治疗决策,培养归属感,赋予BC幸存者权力。它们还有助于减少耻辱感,并建立支持性社区网络,这对于在资源匮乏的环境中长期生存至关重要。扩大对这些群体的接触可以显著提高埃塞俄比亚和类似情况下的癌症治疗结果。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Exploring the impact of breast cancer support groups on survivorship and treatment decision-making in eastern Ethiopia: a qualitative study.

Purpose: This study explores the psychosocial impact of breast cancer (BC) support groups on survivorship and treatment decision-making among women in Harar, Ethiopia. It examines the influence of cultural, social, and economic factors on treatment decisions and assesses the effectiveness of support groups in addressing these challenges.

Methods: A community-based case study used semi-structured, in-depth interviews and focus group discussions. Participants included women attending BC support groups and key informants, including healthcare providers, caregivers, and spiritual leaders. Data were collected at the Hiwot Fana Cancer Treatment Center and were analyzed thematically using an inductive approach to identify key themes.

Results: The study highlighted significant barriers to timely BC treatment, including cultural stigma, financial constraints, reliance on alternative medicine, and limited healthcare infrastructure. Support groups were pivotal in improving emotional and psychological well-being, fostering a sense of community, and influencing treatment decision-making. Participants reported increased awareness, reduced stigma, and enhanced community advocacy.

Conclusions: BC support groups in Harar address critical gaps in cancer care by providing psychosocial support and mitigating barriers to treatment. These groups also serve as platforms for community education and advocacy, promoting early detection and modern treatment practices.

Implications for cancer survivors: Support groups empower BC survivors by improving emotional resilience, facilitating informed treatment decisions, and fostering a sense of belonging. They also help reduce stigma and build supportive community networks essential for long-term survivorship in low-resource settings. Expanding access to such groups could significantly enhance cancer care outcomes in Ethiopia and similar contexts.

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来源期刊
Supportive Care in Cancer
Supportive Care in Cancer 医学-康复医学
CiteScore
5.70
自引率
9.70%
发文量
751
审稿时长
3 months
期刊介绍: Supportive Care in Cancer provides members of the Multinational Association of Supportive Care in Cancer (MASCC) and all other interested individuals, groups and institutions with the most recent scientific and social information on all aspects of supportive care in cancer patients. It covers primarily medical, technical and surgical topics concerning supportive therapy and care which may supplement or substitute basic cancer treatment at all stages of the disease. Nursing, rehabilitative, psychosocial and spiritual issues of support are also included.
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