COG KidsCare应用程序改善照顾者在孩子癌症旅程中的感知教育和支持。

IF 1 4区 医学 Q3 NURSING
Meghan Pike, Katrina MacDonald, April Connolly, Bilal Marwa, Melissa Hum, Stephanie Villeneuve
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引用次数: 0

摘要

背景:儿童肿瘤小组(COG) KidsCare应用程序(App)是一个移动健康工具,包含儿科肿瘤护理人员的教育材料。虽然研究了应用程序的可用性,但应用程序对护理人员体验的影响尚未得到检验。本研究的目的是评估应用程序对儿童肿瘤护理人员的教育和支持的影响。方法:采用Opinio软件制作一份23项选择题问卷,通过App内嵌超链接及纸质形式发放。家长/看护人参加了一个由家长/看护人主持的虚拟的、半结构化的焦点小组。参与者由护士调查员采用方便抽样确定。数据分析采用描述性统计。结果:25名护理人员完成问卷;6人参加了采访。88%的受访者认为该App提供了有价值的教育材料;60%的人认为这让他们感觉得到了更好的支持。焦点小组的所有参与者一致认为,应用程序在治疗开始时会有所帮助。讨论:结果表明,COG KidsCare应用程序提高了照顾者的教育水平,并积极影响了他们对支持的看法。它可能对癌症诊断后6个月内的家庭影响最大,应该尽早提供给家庭。还建议在整个治疗过程中与家庭一起重新使用该应用程序并进行随访。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
COG KidsCare App Improves Caregivers' Perceived Education and Support During Their Child's Cancer Journey.

Background: The Children's Oncology Group (COG) KidsCare App (App) is an mHealth tool that contains educational materials for pediatric oncology caregivers. While the usability of the App has been studied, the effects of the App on the experience of caregivers have not been examined. The objective of this study was to evaluate the impact of the App on education and support of pediatric oncology caregivers. Method: A 23-item multiple-choice questionnaire was developed using Opinio software and disseminated via hyperlink embedded in the App and on paper. Parents/caregivers participated in a virtual, semi-structured focus group hosted by a parent/caregiver. Participants were identified by nurse investigators using convenience sampling. Data were analyzed using descriptive statistics. Results: Twenty-five caregivers completed the questionnaire; six participated in interviews. The App provided valuable educational materials for 88% of respondents; 60% agreed it helped them feel better supported. All participants in the focus groups unanimously agreed that the App would have been helpful at the beginning of their treatment. Discussion: Results demonstrate that the COG KidsCare App improves caregivers' education and positively impacts their perception of support. It is likely most impactful for families who are within 6 months of a cancer diagnosis and should be provided to families as early as possible. Revisiting the App with families throughout their treatment journey and into follow-up is also recommended.

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CiteScore
3.30
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