印尼神经科医生对原发性进行性失语症的知识、态度和实践。

IF 3.4 3区 医学 Q2 NEUROSCIENCES
Fasihah Irfani Fitri, Boon Lead Tee, Jeanne Gallée, Aldy Safruddin Rambe, Elmeida Effendy, Alfansuri Kadri, Pukovisa Prawiroharjo, Inke Nadia Diniyanti Lubis, Khairul Putra Surbakti, Mustafa Mahmud Amin
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引用次数: 0

摘要

原发性进行性失语症(PPA)是一种损害语言和言语能力的神经退行性综合征。印度尼西亚对PPA的研究有限,了解神经科医生的观点对于改善早期诊断和管理至关重要。目的本研究旨在评估印尼神经科医生对PPA的知识、态度和做法。方法邀请印尼神经科医生完成一份在线调查问卷,内容包括人口统计学、临床经验、对PPA变异和治疗的了解、对诊断的态度和目前的临床实践。结果共192名神经科医师完成调查,其中31-40岁占53.15%,5年以上经验占61.5%。许多人报告PPA的经验有限:43.8%的人从未经历过进行性语言障碍,81.3%的人没有诊断过PPA。虽然对PPA症状和变异的了解很多,但差距仍然存在,特别是在具体的临床特征方面。参与者认识到综合评估和多学科护理的重要性,但评估和转诊的不一致显示了知识与实践之间的差距。结论虽然印尼神经科医生对PPA有基本的了解,但在识别变异特异性特征、评估方法和转诊途径方面存在显著差距。通过有针对性的教育和改进诊断工具来解决这些差距对于加强患者护理至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Knowledge, attitude, and practice of neurologists toward primary progressive aphasia in Indonesia.

BackgroundPrimary progressive aphasia (PPA) is a neurodegenerative syndrome that impairs language and speech abilities. Limited research exists on PPA in Indonesia, and understanding neurologists' perspectives is crucial for improving early diagnosis and management.ObjectiveThis study aimed to assess Indonesian neurologists' knowledge, attitudes, and practices regarding PPA.MethodsIndonesian neurologists were invited to complete an online questionnaire covering demographics, clinical experiences, understanding of PPA variants and treatments, attitudes toward diagnosis, and current clinical practices.ResultsA total of 192 neurologists completed the survey, predominantly aged 31-40 years (53.15%) with over five years of experience (61.5%). Many reported limited experience with PPA: with 43.8% had never encountered progressive language impairment, and 81.3% had not diagnosed PPA. While knowledge of PPA symptoms and variants was strong, gaps remained, particularly in specific clinical features. Participants recognized the importance of comprehensive assessments and multidisciplinary care, but inconsistencies in evaluations and referrals revealed a gap between knowledge and practice.ConclusionsWhile Indonesian neurologists have a foundational understanding of PPA, there are significant gaps in recognizing variant-specific features, assessment methods, and referral pathways. Addressing these gaps through targeted education and improved diagnostic tools is essential for enhancing patient care.

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来源期刊
Journal of Alzheimer's Disease
Journal of Alzheimer's Disease 医学-神经科学
CiteScore
6.40
自引率
7.50%
发文量
1327
审稿时长
2 months
期刊介绍: The Journal of Alzheimer''s Disease (JAD) is an international multidisciplinary journal to facilitate progress in understanding the etiology, pathogenesis, epidemiology, genetics, behavior, treatment and psychology of Alzheimer''s disease. The journal publishes research reports, reviews, short communications, hypotheses, ethics reviews, book reviews, and letters-to-the-editor. The journal is dedicated to providing an open forum for original research that will expedite our fundamental understanding of Alzheimer''s disease.
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