阿尔及利亚南部农村沙漠人群的脑瘫:合并症和未满足需求的流行病学横断面研究。

IF 2 4区 医学 Q3 CLINICAL NEUROLOGY
Linda Bonezzi, Ilaria Accorinti, Francesca Maria Agostina Papoff, Maria Orsi, Giacomo D'Arcangelo, Emanuele Bartolini, Roberta Battini
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引用次数: 0

摘要

背景:脑瘫是一组由早期大脑发育障碍引起的非进行性运动障碍。在卫生保健资源有限的低收入和中等收入国家,其患病率较高。关于难民环境中脑瘫的数据仍然很少,特别是在长期流离失所的地区。方法本横断面研究对阿尔及利亚廷杜夫撒哈拉难民营的29名脑瘫儿童进行了调查。作为人道主义任务的一部分,在门诊访问期间收集了详细的人口统计学、病史、神经学发现和合并症数据。结果65.5%的病例出现了分娩窘迫。运动障碍很明显,只有44.8%的人能走路,20.7%的人不能控制头部。语言迟缓(65.5%)、喂养困难(65.5%)和癫痫(52%)非常普遍。诊断评估,如磁共振成像(MRI)和脑电图(EEG),是稀缺和不一致的。获得康复服务是不连续的,痉挛和疼痛的药物治疗是不可用的。沙质地形等环境因素使机动性进一步复杂化。结论撒哈拉难民营中的脑瘫反映了低收入和中等收入国家的情况,但由于流离失所和资源短缺而加剧。迫切需要改善早期诊断、有组织的康复和有针对性的药物治疗,以解决这些未得到满足的需求,并改善受影响儿童的预后。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Cerebral Palsy in a Rural Desert Population of Southern Algeria: A Cross-Sectional Study of Epidemiology of Comorbidities and Unmet Needs.

BackgroundCerebral palsy is a group of nonprogressive motor disorders resulting from early brain development impairment. Its prevalence is higher in low- and middle-income countries, where health care resources are limited. Data on cerebral palsy in refugee settings remain scarce, particularly in regions marked by prolonged displacement.MethodsThis cross-sectional study examined 29 children with cerebral palsy in the Sahrawi refugee camps in Tindouf, Algeria. Detailed demographic, medical history, neurological findings, and comorbidity data were collected during outpatient visits conducted as part of a humanitarian mission.ResultsPerinatal distress was reported in 65.5% of cases. Motor impairments were significant, with only 44.8% able to walk and 20.7% lacking head control. Language delays (65.5%), feeding difficulties (65.5%), and epilepsy (52%) were highly prevalent. Diagnostic evaluations, such as magnetic resonance imaging (MRI) and electroencephalography (EEG), were scarce and inconsistent. Access to rehabilitation services was discontinuous, and pharmacologic treatments for spasticity and pain were unavailable. Environmental factors, such as sandy terrain, further complicated mobility.ConclusionCerebral palsy in the Sahrawi refugee camps reflects patterns seen in low- and middle-income countries but is exacerbated by displacement and resource scarcity. Improved access to early diagnosis, structured rehabilitation, and targeted pharmacologic therapies is urgently needed to address these unmet needs and improve outcomes for affected children.

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来源期刊
Journal of Child Neurology
Journal of Child Neurology 医学-临床神经学
CiteScore
4.20
自引率
5.30%
发文量
111
审稿时长
3-6 weeks
期刊介绍: The Journal of Child Neurology (JCN) embraces peer-reviewed clinical and investigative studies from a wide-variety of neuroscience disciplines. Focusing on the needs of neurologic patients from birth to age 18 years, JCN covers topics ranging from assessment of new and changing therapies and procedures; diagnosis, evaluation, and management of neurologic, neuropsychiatric, and neurodevelopmental disorders; and pathophysiology of central nervous system diseases.
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