Riad El Fakih, Cristobal Frutos, Carmem Bonfim, Daniel Weisdorf, Mickey Koh, Sebastian Galeano, Kim Sadler, Ahmed Amro, Damiano Rondelli, Dietger Neiderwiser, Mahmoud Aljurf
{"title":"患者倡导造血细胞移植(HCT)的框架:来自全球血液和骨髓移植网络的概述。","authors":"Riad El Fakih, Cristobal Frutos, Carmem Bonfim, Daniel Weisdorf, Mickey Koh, Sebastian Galeano, Kim Sadler, Ahmed Amro, Damiano Rondelli, Dietger Neiderwiser, Mahmoud Aljurf","doi":"10.4103/hemoncstem.HEMONCSTEM-D-24-00054","DOIUrl":null,"url":null,"abstract":"<p><p>Hematopoietic cell transplantation is a complex procedure that often places significant emotional, financial, and social stress on patients, their families, and caregivers. The process is demanding, requiring extended hospital stays, frequent appointments, and ongoing posttransplant care. These challenges are compounded by uncertainty surrounding the outcome as well as financial burden. In this review, we underscore the importance of establishing comprehensive support systems for patients, their families, and caregivers throughout this journey. Providing adequate education and counseling with resources can play a vital role in minimizing the impact on patients and their families.</p>","PeriodicalId":516321,"journal":{"name":"Hematology/oncology and stem cell therapy","volume":"18 1","pages":"1-4"},"PeriodicalIF":0.0000,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Framework for Patient Advocacy in Hematopoietic Cell Transplantation (HCT): An Overview from the Worldwide Network for Blood and Marrow Transplantation.\",\"authors\":\"Riad El Fakih, Cristobal Frutos, Carmem Bonfim, Daniel Weisdorf, Mickey Koh, Sebastian Galeano, Kim Sadler, Ahmed Amro, Damiano Rondelli, Dietger Neiderwiser, Mahmoud Aljurf\",\"doi\":\"10.4103/hemoncstem.HEMONCSTEM-D-24-00054\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Hematopoietic cell transplantation is a complex procedure that often places significant emotional, financial, and social stress on patients, their families, and caregivers. The process is demanding, requiring extended hospital stays, frequent appointments, and ongoing posttransplant care. These challenges are compounded by uncertainty surrounding the outcome as well as financial burden. In this review, we underscore the importance of establishing comprehensive support systems for patients, their families, and caregivers throughout this journey. Providing adequate education and counseling with resources can play a vital role in minimizing the impact on patients and their families.</p>\",\"PeriodicalId\":516321,\"journal\":{\"name\":\"Hematology/oncology and stem cell therapy\",\"volume\":\"18 1\",\"pages\":\"1-4\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2025-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Hematology/oncology and stem cell therapy\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.4103/hemoncstem.HEMONCSTEM-D-24-00054\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/4/23 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Hematology/oncology and stem cell therapy","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.4103/hemoncstem.HEMONCSTEM-D-24-00054","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/4/23 0:00:00","PubModel":"Epub","JCR":"","JCRName":"","Score":null,"Total":0}
Framework for Patient Advocacy in Hematopoietic Cell Transplantation (HCT): An Overview from the Worldwide Network for Blood and Marrow Transplantation.
Hematopoietic cell transplantation is a complex procedure that often places significant emotional, financial, and social stress on patients, their families, and caregivers. The process is demanding, requiring extended hospital stays, frequent appointments, and ongoing posttransplant care. These challenges are compounded by uncertainty surrounding the outcome as well as financial burden. In this review, we underscore the importance of establishing comprehensive support systems for patients, their families, and caregivers throughout this journey. Providing adequate education and counseling with resources can play a vital role in minimizing the impact on patients and their families.