探索悲伤与接受:已故器官捐献者家属的经历与需求。

IF 2.3 Q2 MEDICINE, GENERAL & INTERNAL
SAGE Open Medicine Pub Date : 2025-04-21 eCollection Date: 2025-01-01 DOI:10.1177/20503121251333973
Marzieh Latifi, Elahe Pourhosein, Habib Rahban, Fatemeh Estebsari, Maryam Pourhossein, Sanaz Dehghani
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引用次数: 0

摘要

目的:在考虑器官捐赠之前,家属必须接受他们所爱的人已经脑死亡的事实,器官捐赠是一个有意义的途径。这种接受使他们在脑死亡后同意器官捐赠。本研究旨在探讨已故器官捐献者家属的经验及需求。方法:根据Graneheim和Lundman的方法,采用定性方法和常规的含量分析。通过滚雪球和有目的抽样相结合的方法,选择了12名器官捐赠者的家庭成员参与。数据收集采用半结构化访谈和批评话语分析。结果:女性8名,男性4名,平均年龄55.25±13.02岁。数据分析导致出现了2个主题(支持系统和应对策略),6个副主题(心理问题、社会问题、与他人沟通、社会支持、意义制造、应对悲伤),17个类别(悲伤处理、情绪弹性、理解混合情绪、社会支持网络、污名、社会互动、公共叙事、叙事治疗方法、开放沟通、应对策略、专业支持、支持团体、尊重他们的记忆,练习自我照顾,寻求精神支持,创造仪式,对悲伤有耐心,限制压力源),65个子类别,1237个初始代码。结论:为改善器官捐献流程,支持捐赠家庭,建议考虑适当的基础设施和家庭咨询小组。该研究建议提高对脑死亡的教育和文化敏感度,为家庭提供咨询,并建立支持网络。此外,关于器官分配的更清晰的沟通也有助于在家庭和医疗机构之间建立信任。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Exploring grief and acceptance: Experiences and needs of family members of deceased organ donors.

Objective: Before considering organ donation, family members must come to terms with the fact that their loved one is brain dead and that organ donation is a meaningful path forward. This acceptance enables their consent to organ donation following brain death. This study was conducted to explore the experiences and needs of family members of deceased organ donors.

Method: The study was conducted utilizing qualitative methods and conventional content analysis in accordance with Graneheim and Lundman's approach. Twelve family members of organ donors were chosen to participate through a combination of snowball and purposeful sampling methods. Data were gathered by using semi-structured interviews and critical discourse analysis.

Results: Participants were 8 females and 4 males with a mean age of 55.25 ± 13.02. Data analysis led to the emergence of 2 themes (supporting system and coping strategy), 6 subthemes (psychological issues, social issues, communication with others, social support, meaning-making, coping with their grief), 17 categories (grief processing, emotional resilience, understanding mixed emotion, social support networks, stigma, social interaction, communal narratives, narrative therapy approaches, open communication, coping strategies, professional support, support groups, honor their memory, practice self-care, seek spiritual support, create rituals, be patient with grief, and limit stressors), 65 subcategories, and 1237 initial codes.

Conclusions: To improve the organ donation process and support donor families, it is suggested that appropriate infrastructures and counseling groups for families be considered. The study recommends improving education and cultural sensitivity about brain death, providing counseling for families, and creating support networks. Furthermore, clearer communication about organ allocation can also help build trust between families and medical institutions.

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来源期刊
SAGE Open Medicine
SAGE Open Medicine MEDICINE, GENERAL & INTERNAL-
CiteScore
3.50
自引率
4.30%
发文量
289
审稿时长
12 weeks
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