[意大利心脏淀粉样变性的管理:意大利心脏淀粉样变性网络(RIAC)的全国调查]。

IF 0.7 Q4 CARDIAC & CARDIOVASCULAR SYSTEMS
Cristina Chimenti, Aldostefano Porcari, Marco Cittar, Alberto Aimo, Francesco Musca, Alberto Cipriani, Marco Zuin, Simone Longhi, Andrea Di Lenarda, Marco Merlo, Massimo Iacoviello, Marco Canepa, Giuseppe Limongelli, Michele Emdin, Furio Colivicchi, Pasquale Perrone Filardi, Fabrizio Oliva, Gianfranco Sinagra
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引用次数: 0

摘要

背景:sico - anmco淀粉样变中心的全国调查旨在创建意大利心脏淀粉样变患者识别和跟踪中心的地理地图,并描述其诊断能力和多学科组织。方法:对意大利212个中心进行调查。其中153个中心(72%),31/35个(89%)为学术医疗中心,122/177个(69%)为医院。结果:结果显示,与南部和岛屿相比,意大利北部和中部的中心患病率更高,突出显示医院心力衰竭/心肌病诊所(53%)和学术医疗中心专门治疗淀粉样变性的诊所(71%)的患者数量更多。大多数中心都有一个内部多学科合作网络,包括神经科医生(82%,学术医疗中心97%,医院78%)和血液科医生(69%,分别为94%和63%),并有可能进行现场心脏磁共振成像(74%,分别为94%和68%)和骨示踪剂闪烁成像(52%,分别为91%和44%)。或者,由于结构良好或偶尔合作,将患者转介到其他中心。相反,只有少数中心进行心内膜活检(31%,71%的学术医疗中心和20%的医院),少数学术医疗中心进行复杂的淀粉样蛋白组织分型技术,如免疫金标记(11%)和质谱分析(4%)。结论:该调查提供了意大利当前情况的重要信息,强调了网络各级之间合作的重要性,以保证所有淀粉样变患者的最佳途径和治疗。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
[Management of cardiac amyloidosis in Italy: a national survey of the Italian Cardiac Amyloidosis Network (RIAC)].

Background: The national survey of the SIC-ANMCO Amyloidosis Centers was designed to create a geographical mapping of the centers that identify and follow patients with cardiac amyloidosis in Italy and to describe their diagnostic capabilities and multidisciplinary organization.

Methods: The survey was administered to 212 centers in Italy. Among them, 153 centers responded (72%), 31/35 (89%) of which were academic medical centers and 122/177 (69%) hospitals.

Results: The results revealed a prevalence of centers in the North and Center of Italy compared to the South and the Islands, highlighting a greater number of patients in heart failure/cardiomyopathy clinics in hospitals (53%) and in clinics dedicated to amyloidosis in academic medical centers (71%). Most centers have an internal multidisciplinary collaboration network with the neurologist (82% in total, 97% in academic medical centers and 78% in hospitals) and the hematologist (69% in total, in 94% and 63%, respectively) and have the possibility of performing on-site cardiac magnetic resonance imaging (74%, in 94% and 68%, respectively) and scintigraphy with bone tracers (52%, in 91% and 44%, respectively), or alternatively to refer patients to other centers thanks to well-structured or occasional collaborations. Conversely, only a minority of centers perform endomyocardial biopsy (31%, in 71% of academic medical centers and in 20% of hospitals) and a smaller number of academic medical centers perform sophisticated amyloid tissue typing techniques such as immunogold labeling (11%) and mass spectrometry (4%).

Conclusions: The survey provided important information on the current Italian situation, underlining the importance of collaboration between the various levels of the network, to guarantee the best possible pathways and treatments for all patients with amyloidosis.

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Giornale italiano di cardiologia
Giornale italiano di cardiologia CARDIAC & CARDIOVASCULAR SYSTEMS-
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