“我更容易交到朋友”:儿童和家庭在自闭症儿童社会团体项目中的经历。

IF 2 3区 医学 Q2 PEDIATRICS
Maya Hayden-Evans, Bahareh Afsharnejad, Elinda Ai Lim Lee, Ben Milbourn, Tanya Picen, Mathew Johnson, Sven Bölte, Sonya Girdler
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引用次数: 0

摘要

背景:社会技能小组计划(SSGP)的目标是自闭症儿童的社会沟通和互动技能。本定性研究探讨了儿童和家庭的生活经历,他们参加了一项随机对照试验(RCT),以评估适用于年龄较小的儿童(8至12岁)的KONTAKT™与积极对照的社会艺术团体(art Legends)的疗效。方法:在干预后立即对参与随机对照试验的家长(n = 37)和儿童(n = 35)进行半结构化在线访谈。面试问题的设计是为了引出与项目内容、结构和经历相关的回答。使用演绎编码框架对数据进行分析。结果:研究结果表明,ssgp,如KONTAKT™,实施多种教学策略,以及较少结构化的社会团体活动,如ART传奇,都可以对结果产生感知的积极影响。据报道,与艺术组相比,KONTAKT™组中有更多的孩子提高了他们的社交技能。总的来说,参与者的经历主要是积极的。确定了参与的障碍(例如,会议时间安排、离家距离)和促进因素(例如,家庭成员的支持);对群体各个方面的感受取决于一系列个人因素(例如,现有的承诺)。结论:本研究从自闭症儿童及其家庭的角度描述了有组织的社会群体参与的经验,支持这种环境对自闭症青少年的积极影响。与会者提出了改善社会群体的建议,有助于持续发展针对自闭症儿童的社会服务指南。试验注册:(1)澳大利亚新西兰临床试验注册中心(ANZCTR): ACTRN12619000994189,注册日期为2019年7月12日,anzctr.org.au;(2) ClinicalTrials.gov: NCT04024111,注册日期为2019年12月1日,网址为https://clinicaltrials.gov。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"I made friends a lot more easily": children and families' experiences of social group programs for children on the autism spectrum.

Background: Social Skills Group Programs (SSGP) target the social communication and interaction skills of children on the autism spectrum. This qualitative study explored lived experiences of children and families who participated in a randomised controlled trial (RCT) evaluating the efficacy of KONTAKT™ adapted for younger children (8 to 12 years) in comparison to an active control social art group (ART Legends).

Methods: Semi-structured interviews were conducted online with parents (n = 37) and children (n = 35) who participated in the RCT, immediately following the interventions. Interview questions were designed to elicit responses relating to program content, structure, and experiences. The data were analysed using a deductive coding framework.

Results: Findings suggest SSGPs such as KONTAKT™, implementing multiple teaching strategies, and less structured social group activities such as ART Legends can both have a perceived positive influence on outcomes. More children in the KONTAKT™ group reportedly improved their social skills than those in the art group. Overall, participants' experiences were predominantly positive. Both barriers (e.g., session timing, distance from home) and facilitators (e.g., support of family members) to participation were identified; feelings towards individual aspects of the groups were dependent on a range of personal factors (e.g., existing commitments).

Conclusion: This study describes experiences of organised social group participation from the perspectives of children on the spectrum and their families, supporting the positive influence of such contexts for autistic youth. Suggestions made by participants to improve social groups are presented, contributing to ongoing development of SSGPs for children on the spectrum.

Trial registration: (1) Australian New Zealand Clinical Trials Registry (ANZCTR): ACTRN12619000994189, registered 12 July 2019, anzctr.org.au; (2) ClinicalTrials.gov: NCT04024111 registered 1 December 2019, https://clinicaltrials.gov .

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来源期刊
BMC Pediatrics
BMC Pediatrics PEDIATRICS-
CiteScore
3.70
自引率
4.20%
发文量
683
审稿时长
3-8 weeks
期刊介绍: BMC Pediatrics is an open access journal publishing peer-reviewed research articles in all aspects of health care in neonates, children and adolescents, as well as related molecular genetics, pathophysiology, and epidemiology.
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