你的宝宝患有唐氏综合症:向父母透露消息的反身性主题分析。

IF 2.8 2区 医学 Q1 OBSTETRICS & GYNECOLOGY
Marcela Tenorio D, Johanna Sagner-Tapia, Renata Garibaldi, Vaso Totsika
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引用次数: 0

摘要

与母亲沟通唐氏综合症诊断是一个关键时刻,可以影响她们的情绪健康和随后对孩子的照顾。本研究旨在探讨接受唐氏综合征诊断的母亲的经历。共有40名母亲参与,42.5%的母亲接受了产前诊断,17.5%的母亲在分娩时接受了诊断,40%的母亲在产后早期接受了诊断。通过反身性主题分析,出现了四个关键主题:(1)关于新闻是谁和如何传递的(2),关于新闻是何时传递的(3),关于新闻应该在哪里传递(4),父母从这个主要是消极的事件中产生的积极体验。我们的研究结果强调,需要对医疗保健专业人员进行更好的培训,以提供敏感的诊断,重点是移情、准确的信息和对家庭的支持资源。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Your baby has down syndrome: a reflexive thematic analysis of breaking the news to parents.

The communication of a Down syndrome diagnosis to mothers is a pivotal moment that can impact their emotional well-being and the subsequent care for their child. This study aimed to explore maternal experiences with receiving a Down syndrome diagnosis. A total of 40 mothers participated, 42.5% received a prenatal diagnosis, 17.5% received the diagnosis during labor and delivery, and 40% received the information at the early postnatal period. Through reflexive thematic analysis, four key themes emerged: (1) About Who and How the News Was Delivered (2), About When the News Was Delivered (3), On Where the News Should Be Delivered (4), parents' positive experiences emerging from this, predominantly, negative episode. Our findings emphasize the need for improved training for healthcare professionals in delivering sensitive diagnoses, with an emphasis on empathy, accurate information, and support resources for families.

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来源期刊
BMC Pregnancy and Childbirth
BMC Pregnancy and Childbirth OBSTETRICS & GYNECOLOGY-
CiteScore
4.90
自引率
6.50%
发文量
845
审稿时长
3-8 weeks
期刊介绍: BMC Pregnancy & Childbirth is an open access, peer-reviewed journal that considers articles on all aspects of pregnancy and childbirth. The journal welcomes submissions on the biomedical aspects of pregnancy, breastfeeding, labor, maternal health, maternity care, trends and sociological aspects of pregnancy and childbirth.
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