遗传学的特殊性-从临床护理的简短观点

Q3 Medicine

Ethics, Medicine and Public Health Pub Date : 2025-01-01 DOI:10.1016/j.jemep.2025.101104

C. Bourgain

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引用次数: 0

摘要

遗传学的特殊性依赖于与这种特殊类型的生物信息相关的强烈想象--它能够揭示不可见的亲密关系--以及对控制其可能产生的负面社会影响的关注--遗传信息总是高度特殊的，并且在家庭和人群中共享。本文认为，除了具体的法律框架外，这种特殊性还体现在诊所为控制在护理环境中使用这种科学知识所带来的巨大不确定性而付出的努力。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Genetics’ exceptionality – A short perspective from clinical care

Genetics exceptionality relies on the strong imaginaries associated with this particular type of biological information – its capacity to disclose the invisible intimate- and on the concerns for controlling its possibly negative social impacts – the genetic information is always both highly specific and shared within families and populations. The paper claims that together with specific legal frameworks, this exceptionality is also embodied by the amount of effort performed in the clinic to control the strong uncertainties associated with the usage of this scientific knowledge in care contexts.

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来源期刊

Ethics, Medicine and Public Health Medicine-Health Policy

CiteScore

2.20

自引率

0.00%

发文量

107

审稿时长

42 days

期刊介绍： This review aims to compare approaches to medical ethics and bioethics in two forms, Anglo-Saxon (Ethics, Medicine and Public Health) and French (Ethique, Médecine et Politiques Publiques). Thus, in their native languages, the authors will present research on the legitimacy of the practice and appreciation of the consequences of acts towards patients as compared to the limits acceptable by the community, as illustrated by the democratic debate.