痛风患者用药的观点和经验:定性研究的专题综合。

Olav Tvedten,Sacha Bossina,Muguet Koobasi,Allison Jaure,Brian Liang,Clarice Tang,Kathleen Tymms,Gabor Major,Ayano Kelly
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引用次数: 0

摘要

目的描述患者对痛风药物治疗的看法和经验,为以患者为中心的实践提供信息。方法采用系统评价(MEDLINE, Embase, PsychInfo, CINAHL)和专题分析方法对截至2023年5月的研究进行定性分析。结果在涉及1203名患者的45项研究中确定了5个主要主题:否认疾病,谈判不确定性,处理竞争优先事项,避免痛苦和生活方式限制,以及制定策略和授权。结论痛风患者希望避免痛苦和生活方式的限制,但担心被污名化和对药物的不确定性。为了克服坚持现有和有效治疗的障碍,需要提供有关该病的全面信息和重新定义不同药物的作用。我们的结果强调了保持以患者为中心的关注的根本重要性,包括临床医生如何重新定义痛风管理方法的一些途径。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Patients' perspectives and experiences with medication for gout: A thematic synthesis of qualitative studies.
OBJECTIVE To describe patients' perspectives and experiences of medications for gout to inform patient-centred practice. METHODS Systematic review (MEDLINE, Embase, PsychInfo, CINAHL) and thematic analysis of studies using qualitative methodology to May 2023. RESULTS Five dominant themes were identified in 45 studies involving 1203 patients:- denying illness, negotiating uncertainty, juggling competing priorities, avoiding suffering and lifestyle restrictions, and developing strategies and empowerment. CONCLUSION Patients with gout wanted to avoid suffering and lifestyle restrictions but were concerned with stigmatisation and had uncertainty about medications. Comprehensive information about the disease and reframing the role of the different medications is needed to overcome the barriers to adherence to available and effective treatment. Our results highlight the fundamental importance of maintaining a patient-centred focus and include some avenues of how clinicians may redefine their approach to gout management.
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