Olav Tvedten,Sacha Bossina,Muguet Koobasi,Allison Jaure,Brian Liang,Clarice Tang,Kathleen Tymms,Gabor Major,Ayano Kelly
{"title":"痛风患者用药的观点和经验:定性研究的专题综合。","authors":"Olav Tvedten,Sacha Bossina,Muguet Koobasi,Allison Jaure,Brian Liang,Clarice Tang,Kathleen Tymms,Gabor Major,Ayano Kelly","doi":"10.3899/jrheum.2024-1021","DOIUrl":null,"url":null,"abstract":"OBJECTIVE\r\nTo describe patients' perspectives and experiences of medications for gout to inform patient-centred practice.\r\n\r\nMETHODS\r\nSystematic review (MEDLINE, Embase, PsychInfo, CINAHL) and thematic analysis of studies using qualitative methodology to May 2023.\r\n\r\nRESULTS\r\nFive dominant themes were identified in 45 studies involving 1203 patients:- denying illness, negotiating uncertainty, juggling competing priorities, avoiding suffering and lifestyle restrictions, and developing strategies and empowerment.\r\n\r\nCONCLUSION\r\nPatients with gout wanted to avoid suffering and lifestyle restrictions but were concerned with stigmatisation and had uncertainty about medications. Comprehensive information about the disease and reframing the role of the different medications is needed to overcome the barriers to adherence to available and effective treatment. Our results highlight the fundamental importance of maintaining a patient-centred focus and include some avenues of how clinicians may redefine their approach to gout management.","PeriodicalId":501812,"journal":{"name":"The Journal of Rheumatology","volume":"29 1","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2025-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Patients' perspectives and experiences with medication for gout: A thematic synthesis of qualitative studies.\",\"authors\":\"Olav Tvedten,Sacha Bossina,Muguet Koobasi,Allison Jaure,Brian Liang,Clarice Tang,Kathleen Tymms,Gabor Major,Ayano Kelly\",\"doi\":\"10.3899/jrheum.2024-1021\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"OBJECTIVE\\r\\nTo describe patients' perspectives and experiences of medications for gout to inform patient-centred practice.\\r\\n\\r\\nMETHODS\\r\\nSystematic review (MEDLINE, Embase, PsychInfo, CINAHL) and thematic analysis of studies using qualitative methodology to May 2023.\\r\\n\\r\\nRESULTS\\r\\nFive dominant themes were identified in 45 studies involving 1203 patients:- denying illness, negotiating uncertainty, juggling competing priorities, avoiding suffering and lifestyle restrictions, and developing strategies and empowerment.\\r\\n\\r\\nCONCLUSION\\r\\nPatients with gout wanted to avoid suffering and lifestyle restrictions but were concerned with stigmatisation and had uncertainty about medications. Comprehensive information about the disease and reframing the role of the different medications is needed to overcome the barriers to adherence to available and effective treatment. Our results highlight the fundamental importance of maintaining a patient-centred focus and include some avenues of how clinicians may redefine their approach to gout management.\",\"PeriodicalId\":501812,\"journal\":{\"name\":\"The Journal of Rheumatology\",\"volume\":\"29 1\",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2025-04-15\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"The Journal of Rheumatology\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.3899/jrheum.2024-1021\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"The Journal of Rheumatology","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.3899/jrheum.2024-1021","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Patients' perspectives and experiences with medication for gout: A thematic synthesis of qualitative studies.
OBJECTIVE
To describe patients' perspectives and experiences of medications for gout to inform patient-centred practice.
METHODS
Systematic review (MEDLINE, Embase, PsychInfo, CINAHL) and thematic analysis of studies using qualitative methodology to May 2023.
RESULTS
Five dominant themes were identified in 45 studies involving 1203 patients:- denying illness, negotiating uncertainty, juggling competing priorities, avoiding suffering and lifestyle restrictions, and developing strategies and empowerment.
CONCLUSION
Patients with gout wanted to avoid suffering and lifestyle restrictions but were concerned with stigmatisation and had uncertainty about medications. Comprehensive information about the disease and reframing the role of the different medications is needed to overcome the barriers to adherence to available and effective treatment. Our results highlight the fundamental importance of maintaining a patient-centred focus and include some avenues of how clinicians may redefine their approach to gout management.