在神经科学、人类学和伦理学的十字路口：连体双胞胎洛里和乔治·夏佩尔的案例研究

Q3 Medicine

Ethics, Medicine and Public Health Pub Date : 2025-01-01 DOI:10.1016/j.jemep.2025.101098

C. Germé

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引用次数: 0

摘要

本文研究了连体婴儿洛莉和乔治-沙佩尔（Lori et Georges Schappell）的独特案例。通过结合神经生物学、人类学和伦理学的视角，这些研究有助于我们思考和理解身份构建、大脑可塑性和罕见病症的社会后果。分析社会文化环境对寻求与特殊身体状况相关的性别认同的影响。提出与罕见病症个体研究相关的伦理问题，如知情同意和隐私保护。更广泛地说，这项工作是研究流的一部分，旨在更好地理解自我建构过程中生物与社会之间的复杂互动。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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At the crossroads of neuroscience, anthropology, and ethics: The case study of conjoined twins Lori and George Schappell

This article studies the unique case of conjoined twins Lori et Georges Schappell, who lives extraordinary lives while defying social and medical norms. By combining neurobiological, anthropological, and ethical perspectives, these research helps our reflection and understanding of identity construction, brain plasticity and socials consequences of rare medical conditions.

I tried to explore the neurobiological mechanisms underlying gender identity construction in the context of craniopagus twins. Analyze the influence of the socio-cultural environment on the search for gender identity associated with an exceptional physical condition. Raise ethical questions related to research on individuals with rare conditions, such as informed consent and privacy protection.

More generally, this work is part of a research stream with aims to better understanding of complex interactions between biology and social in the construction of the self.

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来源期刊

Ethics, Medicine and Public Health Medicine-Health Policy

CiteScore

2.20

自引率

0.00%

发文量

107

审稿时长

42 days

期刊介绍： This review aims to compare approaches to medical ethics and bioethics in two forms, Anglo-Saxon (Ethics, Medicine and Public Health) and French (Ethique, Médecine et Politiques Publiques). Thus, in their native languages, the authors will present research on the legitimacy of the practice and appreciation of the consequences of acts towards patients as compared to the limits acceptable by the community, as illustrated by the democratic debate.