采用E2PLUS工具和资源,促进癌症中心以患者为中心和社区参与的研究机构能力的发展。

IF 2.1 Q3 MEDICINE, RESEARCH & EXPERIMENTAL
Journal of Clinical and Translational Science Pub Date : 2025-02-12 eCollection Date: 2025-01-01 DOI:10.1017/cts.2025.27
Katherine J Briant, Prajakta Adsul, Elizabeth A Carosso, Marty Chakoian, Diane Mapes, Terri Coutee, Bridgette Hempstead, Laurie Hassell, Wendy Law, Jason A Mendoza
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引用次数: 0

摘要

简介:Fred Hutch/华盛顿大学/西雅图儿童癌症联盟(Consortium)的社区拓展与参与办公室(OCOE)与斯坦福大学医学院和莫尔豪斯医学院一起实施了参与公平Plus (E2PLUS),这是一个多机构的实践社区,旨在学习和分享以患者为中心和社区参与的研究(P/CEnR)实践。新墨西哥大学(UNM)促进了这一合作。方法:该联盟组成了一个12人的冠军团队,他们参加了由新墨西哥大学主办的两次虚拟研讨会。联盟执行领导(n = 4)参加了访谈,调查人员(n = 4)和社区成员/患者倡导者(n = 8)参加了焦点小组,以提供关于P/CEnR的制度背景。这是一篇关于过程和发现的论文。结果:通过E2PLUS的参与,冠军团队确定了解决机构卫生不公平问题的四项战略:1)增加代表性不足群体在各级机构领导和咨询委员会的参与;2)建立患者参与办公室,培训和支持参与机构倡议的患者,并为研究团队提供建议;3)扩大社区参与培训、资源和机构承诺,重点关注社区确定的社会和卫生需求;4)为整个联盟的卫生公平工作建立一个伞形实体。结论:虽然该联盟拥有长期的社区咨询委员会和具有P/CEnR专业知识的教职员工,但它没有集中的、制度性的支持P/CEnR的资源、政策和基础设施。通过参加E2PLUS,冠军小组获得了技术援助,利用定性数据影响战略,指导华盛顿共同体卫生公平基础设施和P/CEnR能力的发展。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Adoption of E2PLUS tools and resources to promote the development of institutional capacity for patient-centered and community-engaged research at a cancer center.

Introduction: The Fred Hutch/University of Washington/Seattle Children's Cancer Consortium's (Consortium) Office of Community Outreach & Engagement (OCOE) joined Stanford Medicine and Morehouse School of Medicine in implementing Engage for Equity Plus (E2PLUS), a multi-institutional community of practice to learn and share patient-centered and community-engaged research (P/CEnR) practices. University of New Mexico (UNM) facilitated this collaboration.

Methods: The Consortium formed a Champion Team of 12 people who participated in two virtual workshops facilitated by UNM. Consortium executive leadership (n = 4) participated in interviews, and investigators (n = 4) and community members/patient advocates (n = 8) participated in focus groups to provide institutional context regarding P/CEnR. This is a paper on the process and findings.

Results: Through E2PLUS engagement, the Champion Team identified four strategies to address institutional health inequities: 1) increase participation of underrepresented groups at all levels of institutional leadership and advisory boards; 2) create an Office of Patient Engagement to train and support patients who participate in institutional initiatives and advise research teams; 3) expand community engagement training, resources, and institutional commitment to focus on community-identified social and health needs; and 4) establish an umbrella entity for health equity efforts across the Consortium.

Conclusion: While the Consortium had longstanding community advisory boards and faculty and staff with P/CEnR expertise, it did not have centralized and institutionally supported P/CEnR resources, policies, and infrastructure. By participating in E2PLUS, the Champion Team received technical assistance to leverage qualitative data to influence strategies to guide the development of Consortium health equity infrastructure and capacity for P/CEnR in Washington.

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来源期刊
Journal of Clinical and Translational Science
Journal of Clinical and Translational Science MEDICINE, RESEARCH & EXPERIMENTAL-
CiteScore
2.80
自引率
26.90%
发文量
437
审稿时长
18 weeks
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