Siena S Vendlinski, Agatha A Laboe, Peyton Crest, Claire G McGinnis, Molly F Steinhoff, Denise E Wilfley, C Barr Taylor, Ellen E Fitzsimmons-Craft, Erin C Accurso
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引用次数: 0
摘要
背景:有公共保险和无保险的个人--其中许多人因种族/民族、能力状况和/或其他社会身份而被边缘化--在获得饮食失调(ED)循证干预措施(EBIs)方面遇到障碍。此外,EBI 并非针对不同人群而开发,这加剧了治疗效果不佳的问题。移动技术可以很好地弥合这一差距,增加低成本、对文化敏感的 EBIs 的使用:本研究采用以用户为中心的设计方法,对现有的基于认知行为疗法的数字程序进行了改编,并对其可用性进行了评估,抽样调查了 11 名患有(亚)临床狂欢型 ED 的参与者,他们都有公共保险(10 人)或无保险(1 人)。参与者主要是非拉丁裔白人女性(n = 8)。对参与者进行了两次半结构化访谈:一次是评估治疗需求,另一次是获取项目反馈。访谈采用归纳式主题分析法进行编码:结果:访谈 1 的反馈意见集中在三个主题上:康复之旅、治疗经历以及对在线项目的参与和期望。参与者表示面临医疗保健方面的障碍,如保险覆盖率低和缺乏训练有素的医疗服务提供者,并对教练感兴趣,以提高治疗的责任感。访谈 2 的反馈意见集中在三个主题上:内容开发、参与者在心理健康方面的经历以及真实世界的使用。参与者很喜欢内容,但强调需要改进多样化的代表性(如性别、体型):总之,用户的反馈意见对于调整原始 EBI 至关重要,这样才能使干预措施适合这一服务不足人群的需求,最终极有可能解决 ED 治疗的关键障碍:本研究已通过旧金山加利福尼亚大学机构审查委员会(IRB)(IRB #22-35936)和圣路易斯华盛顿大学机构审查委员会(IRB ID 202304167)的审查和批准。
Adaptations of an online cognitive-behavioral therapy intervention for binge type eating disorders in publicly-insured and uninsured adults: a pilot study.
Background: Publicly-insured and uninsured individuals-many of whom are marginalized because of race/ethnicity, ability status, and/or other social identities-experience barriers to accessing evidence-based interventions (EBIs) for eating disorders (EDs). Additionally, EBIs have not been developed with or for diverse populations, exacerbating poor treatment uptake. Mobile technology is well-positioned to bridge this gap and increase access to low-cost, culturally-sensitive EBIs.
Methods: This study leverages a user-centered design approach to adapt an existing coached cognitive-behavioral therapy-based digital program and evaluate its usability in a sample of 11 participants with (sub)clinical binge type EDs who are publicly-insured (n = 10) or uninsured (n = 1). Participants were primarily non-Latinx White women (n = 8). Two semi-structured interviews occurred with participants: one to assess treatment needs and the other to obtain program-specific feedback. Interviews were coded using inductive thematic analysis.
Results: Interview 1 feedback converged on three themes: Recovery Journey, Treatment Experiences, and Engagement with and Expectations for Online Programs. Participants endorsed facing barriers to healthcare, such as poor insurance coverage and a lack of trained providers, and interest in a coach to increase treatment accountability. Interview 2 feedback converged on three themes: Content Development, Participant Experiences with Mental Health, and Real-World Use. Participants liked the content but emphasized the need to improve diverse representation (e.g., gender, body size).
Conclusions: Overall, user feedback is critical to informing adaptations to the original EBI so that the intervention can be appropriately tailored to the needs of this underserved population, which ultimately has high potential to address critical barriers to ED treatment.
Trial registration: This study was reviewed and approved by the Institutional Review Board (IRB) at the University California, San Francisco (IRB #22-35936) and the IRB at Washington University in St. Louis (IRB ID 202304167).
期刊介绍:
BMC Public Health is an open access, peer-reviewed journal that considers articles on the epidemiology of disease and the understanding of all aspects of public health. The journal has a special focus on the social determinants of health, the environmental, behavioral, and occupational correlates of health and disease, and the impact of health policies, practices and interventions on the community.