“我不想被评判”:青少年2型糖尿病患者生活经历的定性研究。

Gitanjali Subramani, Alexia S Peña, Melissa Oxlad
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引用次数: 0

摘要

目的:探讨青少年T2D的经历,特别是关于(1)诊断和管理以及(2)情绪健康。方法:参与者从澳大利亚一家三级儿科医院招募,参加焦点小组或半结构化访谈。数据分析采用归纳专题分析。结果:8名青少年(7名女性,1名男性)(平均±SD年龄16.2±2.3岁,糖尿病病程中位数[IQR]为1.7[0.8-2.5]年,HbA1c为7.5[6.2-8.4]%,体重指数(Z-score)为1.97[0.70-2.29])。大多数参与者(n = 6)来自不同的语言背景。他们的糖尿病管理从单独的生活方式措施到药物治疗各不相同。专题分析产生了与诊断和管理相关的三个主题:(1)“饮食改变是管理T2D的最大障碍”,(2)“药物对控制T2D构成了重大挑战”,以及(3)“提醒在青少年T2D管理中的价值各不相同。此外,还产生了四个与情绪健康相关的主题:(1)“在诊断的时候会有不同的感受”,(2)“糖尿病对青少年T2D患者的日常生活有不同的影响”,(3)“年轻人害怕耻辱和评判”,以及(4)“拥有良好的支持网络很重要。”结论:青少年T2D患者在饮食调整和药物管理方面存在困难。青少年在诊断时的感受和T2D对年轻人生活的影响各不相同。他们害怕评判和耻辱,一个多样化的支持网络对于支持他们的T2D管理和情感健康至关重要。研究结果可以帮助卫生专业人员支持青少年T2D。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"I Don't Want to Feel Judged": A Qualitative Study of Adolescents' Experiences of Living with Type 2 Diabetes.

Objectives: To explore adolescents' experiences of T2D, particularly concerning (1) diagnosis and management and (2) emotional wellbeing.

Methods: Participants, recruited from an Australian tertiary paediatric hospital, participated in a focus group or semi-structured interview. Data were analysed using inductive thematic analysis.

Results: Eight adolescents (seven females and one male) (mean±SD age 16.2±2.3 years, median [IQR] diabetes duration 1.7 [0.8-2.5] years, HbA1c 7.5 [6.2-8.4]%, and body mass index (Z-score) 1.97 [0.70-2.29]) participated. Most participants (n = 6) were from a linguistically diverse background. Their diabetes management varied from lifestyle measures alone to medication/s. Thematic analysis generated three themes relating to diagnosis and management: (1) 'Dietary modification as the biggest encumbrance in managing T2D', (2) 'Medications pose a significant challenge to managing T2D', and (3) 'The value of reminders in managing T2D varies in adolescents. Furthermore, four themes were generated concerning emotional wellbeing: (1) 'Diverse feelings are experienced at the time of diagnosis', (2) 'Diabetes has varying impacts on the daily lives of adolescents with T2D', (3) 'Young people fear stigma and judgement', and (4) 'Having a good support network matters'.

Conclusions: Adolescents with T2D experience difficulties with dietary modification and medication management. Adolescents' feelings at diagnosis and the impact of T2D on a young person's life vary. They fear judgment and stigma, and a diverse support network is paramount in supporting their T2D management and emotional wellbeing. The findings can assist health professionals in supporting adolescents with T2D.

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