Svea Cheng, David Lazris, Christianna Bartel, Krina C Durica, Leeann Chen, Jennifer Fedor, Carissa A Low
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引用次数: 0
摘要
目的：由于癌症治疗方法的进步，越来越多的 IV 期癌症患者活得更长。然而，晚期癌症患者必须应对独特的日常挑战和经历，而他们的医疗团队可能对这些挑战和经历了解不够。本研究旨在更好地了解晚期癌症患者 "好的一天 "与 "糟糕的一天 "的活动、决定和经历：20 名 IV 期癌症患者完成了半结构化访谈，访谈内容包括对他们一天的生活质量进行评分，以及描述他们一天中的经历和活动。访谈还要求参与者描述理论上的 "非常好的一天 "和 "非常糟糕的一天"，以及他们会给另一位晚期癌症患者的建议，即如何让一天过得更好。我们采用主题分析法对访谈记录进行分析，并找出不同参与者的共同主题：访谈显示，"美好的一天 "与以下方面有关：感觉自己就像患癌前的自己、让自己参与能带来健康和快乐的活动、感觉与他人有联系、感觉有成就感以及实践积极的思维模式。另一方面，失控、不确定性/不可预测性、破坏性的身体症状、医疗保健方面的负面经历以及无法实现自己的目标则是 "坏日子 "中常见的情况：这项定性研究强调了界定 IV 期癌症患者好日子和坏日子的共同主题。了解个人的价值观和优先事项可帮助护理团队为晚期癌症患者提供支持，以优化他们的生活质量和功能，并帮助他们做出治疗决定。
Exploring what constitutes "a good day" for individuals living with advanced cancer: a qualitative interview study.
Purpose: More people are living longer with stage IV cancer due to advances in cancer treatments. However, individuals living with advanced cancer must navigate unique day-to-day challenges and experiences that may be incompletely understood by their health care team. This study aims to better understand the activities, decisions, and experiences that characterize a "good day" versus a "bad day" for individuals living with advanced cancer.
Methods: Twenty participants with stage IV cancer completed semi-structured interviews which involved rating the quality of their day as well as characterizing their experiences and activities during the day. Participants were also asked to describe a theoretical "very good day" versus a "very bad day" for them personally, as well as advice they would give to another patient with advanced cancer about how to make a day better. Thematic analysis was used to analyze interview transcripts and identify common themes across participants.
Results: Interviews revealed that "good days" were associated with feeling like oneself before cancer, bringing oneself to engage in activities that bring wellness and joy, feeling connected to others, feeling accomplished, and practicing positive thought patterns. On the other hand, loss of control, uncertainty/unpredictability, disruptive physical symptoms, negative experiences with health care, and inability to reach one's goals were common on "bad days."
Conclusions: This qualitative study highlighted common themes in what defines good and bad days living with stage IV cancer. Understanding individual values and priorities may help care teams support people with advanced cancer to optimize their quality of life and functioning and navigate treatment decisions.
期刊介绍：
Supportive Care in Cancer provides members of the Multinational Association of Supportive Care in Cancer (MASCC) and all other interested individuals, groups and institutions with the most recent scientific and social information on all aspects of supportive care in cancer patients. It covers primarily medical, technical and surgical topics concerning supportive therapy and care which may supplement or substitute basic cancer treatment at all stages of the disease.
Nursing, rehabilitative, psychosocial and spiritual issues of support are also included.
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