“呃……你是怎么抓住它的?”-牛皮癣对社会交往影响的定性研究。

IF 3.7 4区 医学 Q1 DERMATOLOGY
Susan M Moschogianis, Anna Chisholm, Shane McKie, Christopher E M Griffiths, Rebecca Elliott, C Elise Kleyn
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引用次数: 0

摘要

背景:牛皮癣与严重的心理残疾有关。由于皮肤损伤的可见性,牛皮癣患者通常报告污名化和公众排斥的经历。目的:我们旨在深入了解银屑病相关社会互动的程度、类型和管理的个体经历,以及对社会功能的长期影响。方法:采用定性、半结构化访谈法(n=24),了解银屑病患者的看法和经历。数据分析采用归纳专题分析。结果:分析产生了四个主要主题:1)“与牛皮癣相关的各种互动经历”;2)“对自我意识的威胁”“保持社会关系”和;4)“浪费了积极互动的机会”。牛皮癣对社会交往有显著影响。虽然公开的负面反应很少,但即使是支持性的评论也会被患者评价为负面的,这是对病情的不必要的提醒。患者在社交场合的行为动机是希望尽量减少进一步的关注,保持自我认同和保护现有的社会关系。长期的社交回避会导致自我意识受损,对沟通技巧的信心下降。结论:牛皮癣患者可能面临独特的社会挑战。即使皮肤在临床上得到了很好的控制,患者也可能难以重新参与社交活动。自我意识的损害和对沟通技巧的信心下降表明,心理疗法,如接受和承诺疗法和社交技能训练可能是有益的。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"Ugh…how do you catch that?" - A qualitative study of the impact of psoriasis on social interactions.

Background: Psoriasis is associated with significant psychological disability. Due to the visibility of skin lesions, patients with psoriasis commonly report experiences of stigmatisation and public rejection.

Objectives: We aimed to gain insight into individuals' experiences of the extent, type and management of psoriasis-related social interactions, and the long-term impact on social functioning.

Methods: Qualitative, semi-structured interviews (n=24) were used to elicit the views and experiences of psoriasis patients. Data were analysed using inductive thematic analysis.

Results: Analysis produced four overarching themes: 1) 'varied experiences of psoriasis-related interactions'; 2) 'threat to sense of self' 3) 'preserving social connections' and; 4) 'wasted opportunities for positive interactions'. Psoriasis had a significant impact on social interactions. Although overtly negative reactions were rare, even supportive comments were appraised negatively by patients as an unwanted reminder of the condition. Patients' behaviours within social situations were motivated by desires to minimise further attention, preserve self-identity and protect existing social relationships. Periods of social avoidance contributed to a damaged sense of self and decreased confidence in communication skills.

Conclusions: Living with psoriasis may present unique social challenges. Even when the skin is well controlled clinically, patients may struggle to re-engage socially. The damage to the sense of self and decreased confidence in communication skills suggests that psychological therapies such as Acceptance and Commitment Therapy and social skills training may be beneficial.

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来源期刊
CiteScore
3.20
自引率
2.40%
发文量
389
审稿时长
3-8 weeks
期刊介绍: Clinical and Experimental Dermatology (CED) is a unique provider of relevant and educational material for practising clinicians and dermatological researchers. We support continuing professional development (CPD) of dermatology specialists to advance the understanding, management and treatment of skin disease in order to improve patient outcomes.
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