从家庭到替代生活安排的转变：智障成人及其家庭成员的经历

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-04-04 DOI:10.1111/jar.70047

Ruth Walker, Irene Belperio, Christine Bigby, Ilan Wiesel, Fiona Rillotta, Claire Hutchinson

{"title":"从家庭到替代生活安排的转变：智障成人及其家庭成员的经历","authors":"Ruth Walker, Irene Belperio, Christine Bigby, Ilan Wiesel, Fiona Rillotta, Claire Hutchinson","doi":"10.1111/jar.70047","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Background</h3>\n \n <p>It is well documented that many adults with intellectual disabilities live with ageing parents, often without concrete plans for transitioning to alternative living arrangements. Little is known about transition experiences once they occur. This study explores the experiences of adults with intellectual disabilities and their family members of this transition through a relational lens.</p>\n </section>\n \n <section>\n \n <h3> Method</h3>\n \n <p>Semi-structured interviews were conducted with 25 people: 8 adults with intellectual disabilities, 13 parents, and 4 siblings.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Three themes were constructed from the data: ‘Gaining independence and letting go’, ‘negotiating unfamiliar relationships’ and ‘social inclusion and making new connections.’</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>Adults with intellectual disabilities discussed numerous benefits associated with moving out of the family home, including increased autonomy and opportunities for new relationships. Family members also described benefits of the transition, but some grappled with needing to ‘let go’ whilst at the same time retaining some degree of control over their family members’ lives.</p>\n </section>\n </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1000,"publicationDate":"2025-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70047","citationCount":"0","resultStr":"{\"title\":\"The Transition From Family Home to Alternative Living Arrangements: Experiences of Adults With Intellectual Disabilities and Their Family Members\",\"authors\":\"Ruth Walker, Irene Belperio, Christine Bigby, Ilan Wiesel, Fiona Rillotta, Claire Hutchinson\",\"doi\":\"10.1111/jar.70047\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n \\n <section>\\n \\n <h3> Background</h3>\\n \\n <p>It is well documented that many adults with intellectual disabilities live with ageing parents, often without concrete plans for transitioning to alternative living arrangements. Little is known about transition experiences once they occur. This study explores the experiences of adults with intellectual disabilities and their family members of this transition through a relational lens.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Method</h3>\\n \\n <p>Semi-structured interviews were conducted with 25 people: 8 adults with intellectual disabilities, 13 parents, and 4 siblings.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Results</h3>\\n \\n <p>Three themes were constructed from the data: ‘Gaining independence and letting go’, ‘negotiating unfamiliar relationships’ and ‘social inclusion and making new connections.’</p>\\n </section>\\n \\n <section>\\n \\n <h3> Conclusion</h3>\\n \\n <p>Adults with intellectual disabilities discussed numerous benefits associated with moving out of the family home, including increased autonomy and opportunities for new relationships. Family members also described benefits of the transition, but some grappled with needing to ‘let go’ whilst at the same time retaining some degree of control over their family members’ lives.</p>\\n </section>\\n </div>\",\"PeriodicalId\":51403,\"journal\":{\"name\":\"Journal of Applied Research in Intellectual Disabilities\",\"volume\":\"38 2\",\"pages\":\"\"},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2025-04-04\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70047\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Applied Research in Intellectual Disabilities\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/jar.70047\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"PSYCHOLOGY, EDUCATIONAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Applied Research in Intellectual Disabilities","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/jar.70047","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHOLOGY, EDUCATIONAL","Score":null,"Total":0}

引用次数: 0

摘要

有充分的证据表明，许多智力残疾的成年人与年迈的父母生活在一起，往往没有向其他生活安排过渡的具体计划。人们对转变后的经历知之甚少。本研究从关系的角度探讨了智障成人及其家庭成员在这一转变过程中的经历。方法采用半结构式访谈法对25人进行访谈，其中智力障碍成人8人，父母13人，兄弟姐妹4人。结果从数据中构建了三个主题：“获得独立和放手”，“谈判不熟悉的关系”和“社会融入和建立新的联系”。有智力障碍的成年人讨论了搬出家的许多好处，包括更多的自主权和建立新关系的机会。家庭成员也描述了这种转变的好处，但有些人在需要“放手”的同时，又要在一定程度上控制家人的生活。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

查看原文本刊更多论文

The Transition From Family Home to Alternative Living Arrangements: Experiences of Adults With Intellectual Disabilities and Their Family Members

Background

It is well documented that many adults with intellectual disabilities live with ageing parents, often without concrete plans for transitioning to alternative living arrangements. Little is known about transition experiences once they occur. This study explores the experiences of adults with intellectual disabilities and their family members of this transition through a relational lens.

Method

Semi-structured interviews were conducted with 25 people: 8 adults with intellectual disabilities, 13 parents, and 4 siblings.

Results

Three themes were constructed from the data: ‘Gaining independence and letting go’, ‘negotiating unfamiliar relationships’ and ‘social inclusion and making new connections.’

Conclusion

Adults with intellectual disabilities discussed numerous benefits associated with moving out of the family home, including increased autonomy and opportunities for new relationships. Family members also described benefits of the transition, but some grappled with needing to ‘let go’ whilst at the same time retaining some degree of control over their family members’ lives.

求助全文

通过发布文献求助，成功后即可免费获取论文全文。去求助

来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.