咀嚼成形术和腭裂成形术对唇腭裂儿童生活质量的影响。

IF 1.1 4区 医学 Q2 Dentistry
Gabriela Bohneberger, Natasha Magro Ernica
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引用次数: 0

摘要

目的评估接受腭裂成形术或腭裂成形术的唇裂和/或腭裂(CL/P)患者的父母在术前和/或术后的生活质量。样本包括在巴西西巴拉那大学医院接受治疗的非综合征唇裂/腭裂患者的父母/监护人。数据收集时间为2022年2月至2023年12月,内容包括人口统计学信息、用于评估生活质量的家庭影响量表(33个项目)、半结构化访谈以及内容分析。结果护理人员(N = 116)的生活质量总体上处于中上水平,在术前和术后的时间点上相似。访谈中最常见的话题是经济困难、照顾孩子所需的时间、美观问题、喂养、发音和孩子融入社会环境,据报告手术后这些问题都得到了改善。建议尽早通过专业服务进行随访,以改善 CL/P 患儿照顾者的生活质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Impact of Cheiloplasty and Palatoplasty on the Quality of Life of Children With Cleft Lip and Palate.

ObjectiveTo assess the quality of life of parents of patients with cleft lip and/or palate (CL/P) undergoing cheiloplasty or palatoplasty in the pre and/or postoperative periods.DesignThis is a mixed method study. The sample consisted of parents/guardians of non-syndromic patients with CL/P undergoing treatment in the University Hospital of Western Paraná in Brazil. Data were collected from February 2022 to December 2023 and included demographic information, the Impact on Family Scale (33 items) to assess quality of life, and semi-structured interviews, followed by content analysis.ResultsCaregivers' (N = 116) quality of life was generally in the middle to high range and similar across pre and postoperative time points. The most frequent topics identified in interviews were financial difficulties, time required for childcare, esthetic concerns, feeding, phonation, and integration of children into social environments with improvements reported after surgeries.ConclusionQuality of life of caregivers was similar across pre and postoperative periods and content analysis highlighted improvements in psychosocial and functional aspects. Early follow-up with specialized services is recommended to improve the quality of life of caregivers of children with CL/P.

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来源期刊
Cleft Palate-Craniofacial Journal
Cleft Palate-Craniofacial Journal DENTISTRY, ORAL SURGERY & MEDICINE-SURGERY
CiteScore
2.20
自引率
36.40%
发文量
0
审稿时长
4-8 weeks
期刊介绍: The Cleft Palate-Craniofacial Journal (CPCJ) is the premiere peer-reviewed, interdisciplinary, international journal dedicated to current research on etiology, prevention, diagnosis, and treatment in all areas pertaining to craniofacial anomalies. CPCJ reports on basic science and clinical research aimed at better elucidating the pathogenesis, pathology, and optimal methods of treatment of cleft and craniofacial anomalies. The journal strives to foster communication and cooperation among professionals from all specialties.
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