慢性自发性荨麻疹患者报告的结果措施:以优化患者管理为中心的策略。

IF 3.7 4区 医学 Q1 DERMATOLOGY
Eustachio Nettis, Oliviero Rossi, Laura Diluvio, Silvia Ferrucci, Francesca Spinelli, Ornella Bonavita, Riccardo Asero
{"title":"慢性自发性荨麻疹患者报告的结果措施:以优化患者管理为中心的策略。","authors":"Eustachio Nettis, Oliviero Rossi, Laura Diluvio, Silvia Ferrucci, Francesca Spinelli, Ornella Bonavita, Riccardo Asero","doi":"10.1093/ced/llaf110","DOIUrl":null,"url":null,"abstract":"<p><p>Chronic spontaneous urticaria (CSU) is a persistent skin condition characterised by itchy wheals, angioedema, or both, significantly impacting patients' quality of life. The absence of identifiable triggers makes diagnosis, monitoring, and management particularly challenging. Patient-reported outcomes (PROs) are direct reports from patients that offer valuable insights into their health and well-being, enhancing communication between patients and clinicians and enabling more personalised care and informed decision-making. This review provides an overview of twelve patient-reported outcome measures (PROMs) used in CSU, which assist in monitoring disease activity, symptom control, and quality of life. It also explores the potential of mobile health (mHealth) apps as a modern solution for real-time disease monitoring, addressing some of the current challenges in CSU management.</p>","PeriodicalId":10324,"journal":{"name":"Clinical and Experimental Dermatology","volume":" ","pages":""},"PeriodicalIF":3.7000,"publicationDate":"2025-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Patient-reported outcome measures for chronic spontaneous urticaria: a strategy centred on optimising patient management.\",\"authors\":\"Eustachio Nettis, Oliviero Rossi, Laura Diluvio, Silvia Ferrucci, Francesca Spinelli, Ornella Bonavita, Riccardo Asero\",\"doi\":\"10.1093/ced/llaf110\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Chronic spontaneous urticaria (CSU) is a persistent skin condition characterised by itchy wheals, angioedema, or both, significantly impacting patients' quality of life. The absence of identifiable triggers makes diagnosis, monitoring, and management particularly challenging. Patient-reported outcomes (PROs) are direct reports from patients that offer valuable insights into their health and well-being, enhancing communication between patients and clinicians and enabling more personalised care and informed decision-making. This review provides an overview of twelve patient-reported outcome measures (PROMs) used in CSU, which assist in monitoring disease activity, symptom control, and quality of life. It also explores the potential of mobile health (mHealth) apps as a modern solution for real-time disease monitoring, addressing some of the current challenges in CSU management.</p>\",\"PeriodicalId\":10324,\"journal\":{\"name\":\"Clinical and Experimental Dermatology\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":3.7000,\"publicationDate\":\"2025-04-02\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Clinical and Experimental Dermatology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1093/ced/llaf110\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"DERMATOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Clinical and Experimental Dermatology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1093/ced/llaf110","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"DERMATOLOGY","Score":null,"Total":0}
引用次数: 0

摘要

慢性自发性荨麻疹(CSU)是一种以痒疹、血管性水肿或两者兼而有之为特征的持续性皮肤疾病,严重影响患者的生活质量。缺乏可识别的触发因素使得诊断、监测和管理尤其具有挑战性。患者报告的结果(pro)是来自患者的直接报告,提供有关其健康和福祉的宝贵见解,加强患者和临床医生之间的沟通,实现更个性化的护理和知情决策。本综述综述了12种用于CSU的患者报告的预后指标(PROMs),这些指标有助于监测疾病活动、症状控制和生活质量。它还探讨了移动健康(mHealth)应用程序作为实时疾病监测的现代解决方案的潜力,解决了当前CSU管理中的一些挑战。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Patient-reported outcome measures for chronic spontaneous urticaria: a strategy centred on optimising patient management.

Chronic spontaneous urticaria (CSU) is a persistent skin condition characterised by itchy wheals, angioedema, or both, significantly impacting patients' quality of life. The absence of identifiable triggers makes diagnosis, monitoring, and management particularly challenging. Patient-reported outcomes (PROs) are direct reports from patients that offer valuable insights into their health and well-being, enhancing communication between patients and clinicians and enabling more personalised care and informed decision-making. This review provides an overview of twelve patient-reported outcome measures (PROMs) used in CSU, which assist in monitoring disease activity, symptom control, and quality of life. It also explores the potential of mobile health (mHealth) apps as a modern solution for real-time disease monitoring, addressing some of the current challenges in CSU management.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
3.20
自引率
2.40%
发文量
389
审稿时长
3-8 weeks
期刊介绍: Clinical and Experimental Dermatology (CED) is a unique provider of relevant and educational material for practising clinicians and dermatological researchers. We support continuing professional development (CPD) of dermatology specialists to advance the understanding, management and treatment of skin disease in order to improve patient outcomes.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信