‘Each loss left an imprint on me’: A grounded theory study exploring end-of-life care experiences in pediatric oncology nurses

Purpose

This study aimed to develop an explanatory framework to examine pediatric oncology nurses' experiences and emotional challenges in providing end-of-life care.

Method

This qualitative study employed a grounded theory methodology. During data collection, 14 pediatric oncology nurses participated in semi-structured interviews. Data collection and analysis were carried out simultaneously. Data analysis followed the open, axial, and selective coding techniques.

Results

Four main categories, and 10 subcategories, were identified to construct the grounded theory: Transition to the End-of-Life Stage, Management of the End-of-Life Care Process, Challenges at the Moment of Death, and Impact on Nurses Following Engagement in Care. These categories encompass the emotional, task-related, and relational dynamics experienced by nurses throughout the end-of-life care process.

Conclusions

The study developed a grounded theory to guide how end-of-life care and loss experiences impact pediatric oncology nurses, providing a chronological overview of their emotions and experiences. Participants underlined that each loss left an imprint on them, as they formed a bond with the children. Nurses require support to develop their practical skills and competencies in coping with the challenging nature of end-of-life care and facing death.