愈合的纽带：儿科同胞干细胞捐赠者的复杂经历。

IF 3 3区医学 Q1 PEDIATRICS

European Journal of Pediatrics Pub Date : 2025-03-31 DOI:10.1007/s00431-025-06094-9

Camie Thys, Patricia Devos, Liesbet Goubert, Sophie Van Lancker, Fleur Baert, Chiara Roebben, Catharina Dhooge, Victoria Bordon

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引用次数: 0

摘要

先前的研究探索了兄弟姐妹儿童干细胞供体的经历；差距仍然存在，特别是在比利时向重病兄弟姐妹捐款的儿童和青少年方面。本研究通过定性分析考察了他们的个人和关系经历。对13位捐赠者进行的半结构化采访显示，他们既有热心又有义务——虽然他们愿意帮助，但许多人觉得自己别无选择，经常被忽视。调查结果强调了捐赠后支持的缺乏以及对捐赠者经验的更多认可的必要性。尽管捐赠前护理有所改善，但加强捐赠后支持仍然至关重要。建议采用结构化、个性化的方法。结论：加强捐赠后支持对于解决对兄弟姐妹献血者的情感和心理影响至关重要。进一步的研究应该探讨捐赠者的年龄和接受者的结果如何影响捐赠体验。

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Healing bonds: the complex experiences of pediatric sibling stem cell donors.

Previous research has explored the experiences of sibling pediatric stem cell donors; gaps remain, particularly regarding children and adolescents in Belgium who donate to severely ill siblings. This study examines their personal and relational experiences through qualitative analysis. Semi-structured interviews with 13 donors revealed a mix of eagerness and obligation-while they were willing to help, many felt they had no choice and were often overlooked. Findings highlight a lack of post-donation support and the need for greater recognition of donors' experiences. Despite improvements in pre-donation care, enhanced post-donation support remains crucial. A structured, personalized approach is recommended.Conclusion: Enhanced post-donation support is essential to address the emotional and psychological impact on sibling donors. Further research should explore how donor age and recipient outcomes shape the donation experience.

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来源期刊

European Journal of Pediatrics 医学-小儿科

CiteScore

5.90

自引率

2.80%

发文量

367

审稿时长

3-6 weeks

期刊介绍： The European Journal of Pediatrics (EJPE) is a leading peer-reviewed medical journal which covers the entire field of pediatrics. The editors encourage authors to submit original articles, reviews, short communications, and correspondence on all relevant themes and topics. EJPE is particularly committed to the publication of articles on important new clinical research that will have an immediate impact on clinical pediatric practice. The editorial office very much welcomes ideas for publications, whether individual articles or article series, that fit this goal and is always willing to address inquiries from authors regarding potential submissions. Invited review articles on clinical pediatrics that provide comprehensive coverage of a subject of importance are also regularly commissioned. The short publication time reflects both the commitment of the editors and publishers and their passion for new developments in the field of pediatrics. EJPE is active on social media (@EurJPediatrics) and we invite you to participate. EJPE is the official journal of the European Academy of Paediatrics (EAP) and publishes guidelines and statements in cooperation with the EAP.