智障儿童父母的心理社会负担:一项基于医院的研究

IF 0.9 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Indian Journal of Community Medicine Pub Date : 2025-01-01 Epub Date: 2024-06-24 DOI:10.4103/ijcm.ijcm_358_23
Reena Kumari, Tapas Kumar Ray, Ananya Ray Laskar, Ritu Majumdar
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引用次数: 0

摘要

背景:智力残疾是一种非传染性健康障碍,已成为全球关注的公共卫生问题,在沟通、学术和社交技能方面存在明显障碍。确定这些孩子的父母的心理压力水平是很重要的。因此,本研究旨在评估智障儿童父母的心理压力水平。材料和方法:研究在新德里Kalawati Saran儿童医院物理医学和康复门诊部(OPD)进行。收集数据分析家庭的心理压力。采用父母压力量表(PSS)作为测量父母压力的工具。结果:共有170名母亲参加了这项研究。总共有14种不同的变量被认为是造成母亲压力的合理因素。四个变量值与PSS之间存在明显的线性关系。这些变量是a)家庭月人均收入,b)社会经济地位,c)研究对象的职业,d)残疾持续时间。整个队列的总体平均PSS为47.14±2.93。低应力的参考标准为19-45,高应力的参考标准为45-90。结论:研究表明,智障儿童的母亲承受着很高的压力。抚养一个有特殊照顾需要的孩子对母亲来说是难以承受的。应提供适当的临床服务,以支持残疾儿童的父母,并提供资源,以教育和使母亲能够管理其儿童的残疾和需求。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Psychosocial Burden in Parents Having Intellectually Disabled Children: A Hospital-based Study.

Background: Intellectual disability is a non-communicable health disorder that has become a public health concern worldwide, with a marked impairment in communication, academic, and social skills. It is important to identify the level of psychological stress among parents of these children. Hence, this study was designed to assess the level of psychological stress among parents having intellectually disabled children.

Materials and methods: The study was conducted in the Physical Medicine and Rehabilitation outpatient department (OPD) at Kalawati Saran Children's Hospital, New Delhi. Data were collected to analyze the psychological stress in families. Parental Stress Scale (PSS) was used as the tool to measure stress in parents.

Results: A total of 170 mothers were enrolled in the study. In total, 14 different variables were considered plausible contributing factors to the mother's stress. Four variables demonstrated a clear linear association between variable values and PSS. These variables were a) per-capita monthly family income, b) socioeconomic status, c) study subjects' occupation, and d) duration of disability. The overall mean PSS for the entire cohort was found to be 47.14 ± 2.93. The reference criteria for low stress was 19-45, and it was 45-90 for high stress.

Conclusion: The study suggests that mothers of children with intellectual disability experience high stress. Raising a child with special care needs is overwhelming for mothers. Appropriate clinical services should be provided to support parents of children with disabilities and offer resources to educate and enable mothers to manage their children's disabilities and needs.

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来源期刊
Indian Journal of Community Medicine
Indian Journal of Community Medicine PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
1.30
自引率
0.00%
发文量
85
审稿时长
49 weeks
期刊介绍: The Indian Journal of Community Medicine (IJCM, ISSN 0970-0218), is the official organ & the only official journal of the Indian Association of Preventive and Social Medicine (IAPSM). It is a peer-reviewed journal which is published Quarterly. The journal publishes original research articles, focusing on family health care, epidemiology, biostatistics, public health administration, health care delivery, national health problems, medical anthropology and social medicine, invited annotations and comments, invited papers on recent advances, clinical and epidemiological diagnosis and management; editorial correspondence and book reviews.
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