多学科药物基因组学诊所的患者观点。

IF 1.9 4区 医学 Q3 PHARMACOLOGY & PHARMACY
Pharmacogenomics Pub Date : 2025-01-01 Epub Date: 2025-03-20 DOI:10.1080/14622416.2025.2481016
Lindy Maska, Roseann S Donnelly, Benjamin J Kerman, Allison Cirino, Elizabeth Fieg
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引用次数: 0

摘要

目的:评估由临床药师、遗传咨询师和医生管理的多学科药物基因组学临床评估后患者的观点。方法:对在布里格姆妇女医院药物基因组学诊所就诊的187名成年人进行调查。完成调查的参与者被邀请完成一个半结构化的访谈。访谈对象的选择是基于回答的顺序,时间安排的可用性,以及参与者在测试和临床过程中的经验范围。问卷调查采用描述性统计分析,访谈记录采用专题分析分析。结果:共收到42份问卷回复;采访了13名参与者。定量数据显示了对多学科临床模式的高度满意度,并相信药物基因组学检测具有价值。定性分析确定了四个主题:1)自我倡导作为药物基因组学结果利用的患者责任,2)对多学科药物基因组学临床模式和团队的高度满意度,3)药物基因组学的实用性,4)药物基因组学资源的需求。结论:患者重视多学科药物基因组学临床团队提供的护理,但他们需要与其他医疗保健专业人员倡导使用他们的结果。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Patient perspectives of a multidisciplinary Pharmacogenomics clinic.

Aim: To assess patient perspectives following evaluation in a multidisciplinary pharmacogenomics clinic run by a clinical pharmacist, genetic counselor, and physician.

Methods: A survey was distributed to 187 adults seen in the Brigham and Women's Hospital Pharmacogenomics Clinic. Participants who completed the survey were invited to complete a semi-structured interview. Interview subjects were selected based on order of responses, scheduling availability, and range of participant experiences with testing and the clinic process. Surveys were analyzed with descriptive statistics, and interview transcripts were analyzed with thematic analysis.

Results: Forty-two survey responses were received; 13 participants were interviewed. Quantitative data demonstrated high satisfaction with the multidisciplinary clinic model and belief that pharmacogenomic testing has value. Qualitative analysis identified four themes: 1) Self-Advocacy as a Patient Responsibility in the Utilization of Pharmacogenomic Results, 2) High Satisfaction with Multidisciplinary Pharmacogenomics Clinic Model and Team, 3) Utility of Pharmacogenomics, and 4) Desire for Pharmacogenomics Resources.

Conclusion: Patients value the care provided by a multidisciplinary pharmacogenomics clinic team, but they need to advocate for the use of their results with other healthcare professionals.

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来源期刊
Pharmacogenomics
Pharmacogenomics 医学-药学
CiteScore
3.40
自引率
9.50%
发文量
88
审稿时长
4-8 weeks
期刊介绍: Pharmacogenomics (ISSN 1462-2416) is a peer-reviewed journal presenting reviews and reports by the researchers and decision-makers closely involved in this rapidly developing area. Key objectives are to provide the community with an essential resource for keeping abreast of the latest developments in all areas of this exciting field. Pharmacogenomics is the leading source of commentary and analysis, bringing you the highest quality expert analyses from corporate and academic opinion leaders in the field.
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