对患有严重精神健康状况的癌症幸存者的关怀和支持的看法。

IF 3.3 2区 医学 Q2 ONCOLOGY
Anat Vass, Marc Gelkopf, Adi Ivzori-Erel, Mordechai Alperin, Hadass Goldblatt, Miri Cohen
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引用次数: 0

摘要

背景:对既往存在严重心理健康状况(SMHC)的癌症幸存者从其家庭和肿瘤专业人员那里获得的态度和支持的研究尚缺乏。目的:探讨SMHC患者如何感知和体验家庭和肿瘤团队的态度和护理。方法:参与者为25名癌症幸存者,6名男性,18名女性,年龄26-86岁,既往患有SMHC。采用解释性现象学方法和反身性主题分析来捕捉参与者的生活经验。结果:出现了两个主题:(a)“他们不把我们当回事”:感知到的家庭态度和支持;和(b)“基本上就像冰一样”:来自肿瘤专业人士的关怀。从这两个主题中,形成了一个核心类型,举例说明了家庭成员和肿瘤团队护理的平行经历和看法:大多数参与者报告的消极态度和不充分的支持;接受一些参与者报告的必要但非情绪化和超然的照顾;少数人表现出积极的态度和充分的支持。在某些情况下,在癌症诊断后,家庭成员变得更加积极。许多参与者经历了肿瘤学专业人士的态度,因为他们受到耻辱的影响,缺乏对他们独特情况的关注。结论:肿瘤专业人员应在护理方面满足幸存者对平等、尊严、人性和隐私的需求,以改善他们的心理健康。此外,支持SMHC患者的家庭成员应获得足够的信息和工具,以促进更好的护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Perceptions About Care and Support Among Cancer Survivors With Severe Mental Health Conditions.

Background: Research on the attitudes and support received by cancer survivors with preexisting severe mental health conditions (SMHC) from their families and oncology professionals is lacking.

Aims: To explore how individuals with SMHC perceive and experience family and oncology team attitudes and care.

Methods: Participants were 25 cancer survivors, 6 men and 18 women, aged 26-86 with preexisting SMHC. The interpretive phenomenological approach and reflexive thematic analysis were used to capture participants' lived experiences.

Results: Two themes emerged: (a) "They don't take us seriously": perceived family attitudes and support; and (b) "It was basically like ice": perceived care from oncology professionals. From these two themes, a core typology was developed, exemplifying the parallel experience and perceptions of care of family members and oncology team: negative attitudes and inadequate support reported by most participants; receiving the essential but unemotional and detached care reported by some participants; and experiencing positive attitudes and adequate support expressed by a few. In some cases, following a cancer diagnosis, family members became more positive. Many participants experienced the oncology professionals' attitudes as affected by stigma and lack of attention to their unique situation.

Conclusion: Oncology professionals should address survivors' needs for equality, dignity, humanity, and privacy in terms of care to improve their psychological well-being. In addition, family members supporting a patient with SMHC should receive sufficient information and tools to promote better care.

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来源期刊
Psycho‐Oncology
Psycho‐Oncology 医学-心理学
CiteScore
6.30
自引率
8.30%
发文量
220
审稿时长
3-8 weeks
期刊介绍: Psycho-Oncology is concerned with the psychological, social, behavioral, and ethical aspects of cancer. This subspeciality addresses the two major psychological dimensions of cancer: the psychological responses of patients to cancer at all stages of the disease, and that of their families and caretakers; and the psychological, behavioral and social factors that may influence the disease process. Psycho-oncology is an area of multi-disciplinary interest and has boundaries with the major specialities in oncology: the clinical disciplines (surgery, medicine, pediatrics, radiotherapy), epidemiology, immunology, endocrinology, biology, pathology, bioethics, palliative care, rehabilitation medicine, clinical trials research and decision making, as well as psychiatry and psychology. This international journal is published twelve times a year and will consider contributions to research of clinical and theoretical interest. Topics covered are wide-ranging and relate to the psychosocial aspects of cancer and AIDS-related tumors, including: epidemiology, quality of life, palliative and supportive care, psychiatry, psychology, sociology, social work, nursing and educational issues. Special reviews are offered from time to time. There is a section reviewing recently published books. A society news section is available for the dissemination of information relating to meetings, conferences and other society-related topics. Summary proceedings of important national and international symposia falling within the aims of the journal are presented.
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