"这段时间我本可以花得更有意义"--儿童患癌后获得经济援助的障碍、促进因素和改善建议。

IF 2.8 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Megumi Lim, Christine Cashion, Sameera Senanayake, Susanna Cramb, Sanjeewa Kularatna, Natalie Bradford
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引用次数: 0

摘要

目的:孩子的癌症诊断会给家庭带来短期和长期的压力。本研究旨在探讨(1)减轻儿童癌症诊断和治疗的经济影响的障碍和推动因素,以及(2)利益相关者建议的经济援助改进领域。方法:本质性研究采用半结构式访谈,访谈对象包括5位医院社工团队成员、3位慈善机构代表及8位癌症患儿家长。这些访谈于2023年4月至2024年1月进行,采用Nvivo软件支持的演绎-归纳方法进行内容分析。结果:减轻财务影响的障碍包括行政困难(如文书工作的复杂性、严格的资格标准和有限的支持)、社会心理因素(如认知负担、社会和社会因素)和导航问题(如沟通不端、支持系统碎片化)。促成因素包括简化的行政程序、导航和申请经济援助方面的协助以及对情感庇护和喘息的社区支持。建议的改进包括简化申请表格,在诊断时自动提供某些财务援助,提供基础设施以支持申请流程,重新分配资金以增加导航员的角色,通过集中平台提供量身定制的信息,以及促进与家长支持小组的联系。对癌症幸存者的影响由于儿童癌症诊断的不确定性而产生的经济压力可能是压倒性的。目前的支持系统在有效减轻这种压力方面存在不足。本研究为政策改革提供了经验证据,以加强对家庭的支持,这对于缓解他们面临的多方面挑战至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"It was time I could have spent better"-the barriers, enablers, and recommendations for improving access to financial aid when a child has cancer.

Purpose: A child's cancer diagnosis imposes both short-term and long-term stress on families. This study aimed to explore (1) the barriers and enablers in alleviating the financial impacts of a child's cancer diagnosis and treatment, and (2) areas for improvement in financial aid as suggested by stakeholders.

Method: This qualitative study utilised semi-structured interviews with five hospital social work team members, three charity representatives and eight parents of children treated for cancer. The interviews, which were conducted between April 2023 and January 2024, were analysed using content analysis with a deductive-inductive approach supported by Nvivo Software.

Results: Barriers to mitigating financial impacts included administrative difficulties (e.g. paperwork complexities, strict eligibility criteria and limited support), psychosocial factors (e.g. cognitive burden, social and societal factors), and navigational issues (e.g. poor communication, fragmented support systems). Enablers included streamlined administrative processes, assistance with navigating and applying for financial aid and community support for emotional refuge and respite. Suggested improvements included simplified application forms, offering automatic provision for certain financial aids upon diagnosis, providing infrastructure to support application processes, reallocating funds to increase navigator roles, providing tailored information through a centralised platform, and facilitating connections to parent support groups. Implications for cancer survivors The financial stress stemming from the uncertainty of a child's cancer diagnosis can be overwhelming. Current support systems fall short in effectively mitigating this stress. This research provides empirical evidence for policy changes to enhance support for families, which is crucial to alleviate the multifaceted challenges they face.

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来源期刊
Supportive Care in Cancer
Supportive Care in Cancer 医学-康复医学
CiteScore
5.70
自引率
9.70%
发文量
751
审稿时长
3 months
期刊介绍: Supportive Care in Cancer provides members of the Multinational Association of Supportive Care in Cancer (MASCC) and all other interested individuals, groups and institutions with the most recent scientific and social information on all aspects of supportive care in cancer patients. It covers primarily medical, technical and surgical topics concerning supportive therapy and care which may supplement or substitute basic cancer treatment at all stages of the disease. Nursing, rehabilitative, psychosocial and spiritual issues of support are also included.
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