Michael Vallis PhD, RPsych , J.J. Bresolin MA , Kim Fletcher PhD , Elizabeth Holmes-Truscott PhD , Jane Speight PhD , Laura Syron MA
{"title":"圆洞里的方钉:2024年加拿大糖尿病患者的社会生活经验。","authors":"Michael Vallis PhD, RPsych , J.J. Bresolin MA , Kim Fletcher PhD , Elizabeth Holmes-Truscott PhD , Jane Speight PhD , Laura Syron MA","doi":"10.1016/j.jcjd.2025.03.001","DOIUrl":null,"url":null,"abstract":"<div><h3>Objectives</h3><div>Diabetes self-management often occurs in social contexts, around others without diabetes. International consensus identifies the pervasive presence of social stigma toward those with diabetes, negatively impacting health, well-being, and social and professional lives. In this study, we aimed to identify the social experiences of Canadian adults living with type 1 diabetes (T1D) or type 2 diabetes (T2D).</div></div><div><h3>Methods</h3><div>An online survey was completed by 1,799 adults with diabetes (T1D: n=786; T2D: n=1,013). The survey assessed diabetes stigma, emotional well-being, diabetes distress, quality of life, and health-care experiences. Analyses involved descriptives of stigma experiences and associations with other measures.</div></div><div><h3>Results</h3><div>Experiencing blame and judgment for having diabetes was common. For T1D, 73% of respondents reported people making unfair assumptions about their capabilities, and 69% reported being judged for what they eat. For T2D, 41% reported being stigmatized as having a “lifestyle disease,” and 31% reported being judged for their food choices. Being treated differently due to diabetes was common: 54% with T1D reported being rejected, and 22% with T2D reported being treated as sick. Many respondents with T1D were concerned about managing diabetes in public (44.2%) and many with T2D were embarrassed about having diabetes (27.4%). Greater stigmatization was associated with lower general emotional well-being, greater diabetes distress, and greater negative impact on quality of life.</div></div><div><h3>Conclusions</h3><div>Adults with T1D or T2D commonly experience stigmatization, negatively impacting well-being and quality of life. These data support changing the conversation about diabetes in ways that will lead to greater respect, empathy, and support for all people living with diabetes in Canada.</div></div>","PeriodicalId":9565,"journal":{"name":"Canadian Journal of Diabetes","volume":"49 3","pages":"Pages 183-193"},"PeriodicalIF":2.3000,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"A Square Peg in a Round Hole: Social Experiences of Living With Diabetes in Canada in 2024\",\"authors\":\"Michael Vallis PhD, RPsych , J.J. Bresolin MA , Kim Fletcher PhD , Elizabeth Holmes-Truscott PhD , Jane Speight PhD , Laura Syron MA\",\"doi\":\"10.1016/j.jcjd.2025.03.001\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Objectives</h3><div>Diabetes self-management often occurs in social contexts, around others without diabetes. International consensus identifies the pervasive presence of social stigma toward those with diabetes, negatively impacting health, well-being, and social and professional lives. In this study, we aimed to identify the social experiences of Canadian adults living with type 1 diabetes (T1D) or type 2 diabetes (T2D).</div></div><div><h3>Methods</h3><div>An online survey was completed by 1,799 adults with diabetes (T1D: n=786; T2D: n=1,013). The survey assessed diabetes stigma, emotional well-being, diabetes distress, quality of life, and health-care experiences. Analyses involved descriptives of stigma experiences and associations with other measures.</div></div><div><h3>Results</h3><div>Experiencing blame and judgment for having diabetes was common. For T1D, 73% of respondents reported people making unfair assumptions about their capabilities, and 69% reported being judged for what they eat. For T2D, 41% reported being stigmatized as having a “lifestyle disease,” and 31% reported being judged for their food choices. Being treated differently due to diabetes was common: 54% with T1D reported being rejected, and 22% with T2D reported being treated as sick. Many respondents with T1D were concerned about managing diabetes in public (44.2%) and many with T2D were embarrassed about having diabetes (27.4%). Greater stigmatization was associated with lower general emotional well-being, greater diabetes distress, and greater negative impact on quality of life.</div></div><div><h3>Conclusions</h3><div>Adults with T1D or T2D commonly experience stigmatization, negatively impacting well-being and quality of life. These data support changing the conversation about diabetes in ways that will lead to greater respect, empathy, and support for all people living with diabetes in Canada.</div></div>\",\"PeriodicalId\":9565,\"journal\":{\"name\":\"Canadian Journal of Diabetes\",\"volume\":\"49 3\",\"pages\":\"Pages 183-193\"},\"PeriodicalIF\":2.3000,\"publicationDate\":\"2025-04-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Canadian Journal of Diabetes\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S1499267125000528\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"ENDOCRINOLOGY & METABOLISM\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Canadian Journal of Diabetes","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S1499267125000528","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"ENDOCRINOLOGY & METABOLISM","Score":null,"Total":0}
A Square Peg in a Round Hole: Social Experiences of Living With Diabetes in Canada in 2024
Objectives
Diabetes self-management often occurs in social contexts, around others without diabetes. International consensus identifies the pervasive presence of social stigma toward those with diabetes, negatively impacting health, well-being, and social and professional lives. In this study, we aimed to identify the social experiences of Canadian adults living with type 1 diabetes (T1D) or type 2 diabetes (T2D).
Methods
An online survey was completed by 1,799 adults with diabetes (T1D: n=786; T2D: n=1,013). The survey assessed diabetes stigma, emotional well-being, diabetes distress, quality of life, and health-care experiences. Analyses involved descriptives of stigma experiences and associations with other measures.
Results
Experiencing blame and judgment for having diabetes was common. For T1D, 73% of respondents reported people making unfair assumptions about their capabilities, and 69% reported being judged for what they eat. For T2D, 41% reported being stigmatized as having a “lifestyle disease,” and 31% reported being judged for their food choices. Being treated differently due to diabetes was common: 54% with T1D reported being rejected, and 22% with T2D reported being treated as sick. Many respondents with T1D were concerned about managing diabetes in public (44.2%) and many with T2D were embarrassed about having diabetes (27.4%). Greater stigmatization was associated with lower general emotional well-being, greater diabetes distress, and greater negative impact on quality of life.
Conclusions
Adults with T1D or T2D commonly experience stigmatization, negatively impacting well-being and quality of life. These data support changing the conversation about diabetes in ways that will lead to greater respect, empathy, and support for all people living with diabetes in Canada.
期刊介绍:
The Canadian Journal of Diabetes is Canada''s only diabetes-oriented, peer-reviewed, interdisciplinary journal for diabetes health-care professionals.
Published bimonthly, the Canadian Journal of Diabetes contains original articles; reviews; case reports; shorter articles such as Perspectives in Practice, Practical Diabetes and Innovations in Diabetes Care; Diabetes Dilemmas and Letters to the Editor.