来自智力和发育障碍成人的女性兄弟姐妹的叙述：韩国身份和成长经历的光声研究

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-06 DOI:10.1111/jar.70029

Min Ah Kim, Jaehee Yi, Shinyeong Hwang, Jimin Sung, Seong Young Lee, Heejin Kim

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引用次数: 0

摘要

本研究旨在利用光声技术全面了解有智力和发育障碍的兄弟姐妹的生活经历。方法7名韩国智力和发育障碍个体的成年女性兄弟姐妹参加6次每周的照片语音会议，包括一次定向会议、以参与者为导向的主题拍照和4次小组讨论，并在讨论中分享他们的照片。结果与4个主题相关的13个主题突出了他们的经验。尽管这些兄弟姐妹面临着照顾兄弟姐妹的压力，但他们描述了成长和对自己身份的反思，随后的观点转变，以及在自我照顾和履行责任之间找到平衡，以保持对兄弟姐妹的爱。结论社会工作专业人员应承认他们的挑战和成长，并帮助他们在生活和照顾角色中找到平衡。通过考虑性别、文化和残疾的交集来解决他们的独特需求也很重要。

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Narratives From Female Siblings of Adults With Intellectual and Developmental Disabilities: A Photovoice Study on Identity and Growth Experiences in South Korea

Background

This study sought a holistic understanding of lived experiences of individuals with a sibling who has intellectual and developmental disabilities using photovoice.

Methods

Seven adult female siblings of individuals with intellectual and developmental disabilities in South Korea engaged in six weekly photovoice sessions, including an orientation session, phototaking on participant-driven themes, and four group discussion sessions in which they shared their photos.

Results

Thirteen subthemes related to four primary themes highlighted their experiences. Although these siblings faced pressure from the responsibilities of caregiving, they described growth and reflection on their identities, subsequent shifts in perspectives, and finding a balance between self-care and fulfilling responsibilities to maintain their love for their sibling.

Conclusions

Social work professionals should acknowledge their challenges and growth and help them find balance in their life and caregiving role. It is also important to address their unique needs by considering the intersection of gender, culture, and disability.

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.