重新确定我的立场:儿童癌症幸存者的青春期兄弟姐妹的经历。

IF 2.1 3区 医学 Q2 NURSING
Sunhee Lee, Da-Suel Lee
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引用次数: 0

摘要

儿童癌症诊断不仅扰乱了患者及其父母的生活,也扰乱了兄弟姐妹的生活和功能。本研究的目的是调查在兄弟姐妹被诊断患有儿童癌症后,家庭中的青少年生活经历。八名儿童癌症幸存者的青少年兄弟姐妹参与了这项描述性定性研究。采用深度访谈和定性分析方法。这个半结构化的问题包括“患病的兄弟姐妹接受治疗时的经历”、“作为患病孩子的兄弟姐妹所面临的困难”、“压力的原因以及如何缓解与兄弟姐妹之间的压力”。根据这些数据制定了三个主题和九个副主题。三个主题分别是“担心家庭”、“被排斥的感觉”、“成为家庭的支持者”。本研究发现,青少年倾向于对家庭产生忧虑和排斥感,但也会成为家庭的支持者。医疗保健提供者需要建议父母为留在家里的孩子提供情感支持,并对克服困难的健康儿童表示感谢。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Re-Determining My Position: Experiences of Adolescent Siblings of Pediatric Cancer Survivors.

Pediatric cancer diagnoses disrupt not only patients and their parents' lives, but also siblings' lives and functioning. The purpose of this study was to investigate the lived adolescent experience within the family after a sibling was diagnosed with pediatric cancer. Eight adolescent siblings of pediatric cancer survivors participated in this descriptive qualitative study. In-depth interviews and qualitative analytic method were used. The semi-structured question consisted of "experiences when the sick sibling was in treatment," "the difficulties faced as a sibling of a sick child," and "the causes of stress and how to relieve stress in the relationship with the sibling." Three themes and nine subthemes were developed from the data. The three themes comprised "worried about family," "feeling excluded," and "becoming a supporter for family." The findings of this study indicated that adolescents tended to experience worry about their family and a feeling of exclusion, but also became a supporter for their family. Healthcare providers need to suggest that parents provide emotional support for children remaining at home and express gratitude to healthy children who are overcoming a difficult situation.

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来源期刊
CiteScore
4.80
自引率
3.70%
发文量
91
审稿时长
6-12 weeks
期刊介绍: NHS has a multidisciplinary focus and broad scope and a particular focus on the translation of research into clinical practice, inter-disciplinary and multidisciplinary work, primary health care, health promotion, health education, management of communicable and non-communicable diseases, implementation of technological innovations and inclusive multicultural approaches to health services and care.
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